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Third Annual Friedreich’s Ataxia Symposium
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Collaborative Clinical Research Network in Friedreich's Ataxia
Jennifer Farmer, MS, CGC
Friedreich’s Ataxia (FA) is a rare condition which leaves patients and families searching for more information and resources. While there is currently no cure for FA, efforts continue to be made towards research that will one day halt or even reverse disease progression. The Friedreich’s Ataxia Program at The Children's Hospital of Philadelphia is pleased to present this one-day symposium providing patients and families with up to date clinical information, therapeutic approaches and current research being conducted in the field of Friedreich’s Ataxia.
Videos in this Series
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Collaborative Clinical Research Network in Friedreich's Ataxia - Friedreich's Ataxia Clinical Systems Affected
- Pathophysiology of Friedreich Ataxia
- Friedreich Ataxia Panel Q & A
- The Heart in Friedreich's Ataxia: What Happens, and Why does it Matter?
- Advanced Cardiac Care in Friedreich Ataxia
- Friedreich Ataxia Panel Q & A Part Two
- Trailor for The Ataxian – a documentary on overcoming challenges with Friedreich Ataxia
- Neurological Function and Assessment in Friedreich Ataxia
- Special Needs Planning: What Keeps You Up at Night?
- Auditory, Speech and Vestibular Abilities in Friedreich Ataxia
- Personal Care Aides
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