Video Library

« Back to Previous Page

YOU ARE WATCHING

Birth of a Breakthrough: Spina Bifida Video - CHOP

en Español

Video Transcript

This is the content

NOW PLAYING: 11 of 12

Fetal Repair Follow-Up Care

The Spina Bifida Clinic at CHOP was the first multidisciplinary follow-up program in the world. Follow-up care after fetal repair is extremely comprehensive at CHOP. The team demonstrates its long-term commitment to families by monitoring the health and well-being of its patients throughout infancy, childhood and into adulthood. CHOP’s Spina Bifida Clinic is dedicated to lifelong follow-up care after fetal repair with specialists in all specialties available to work with the child throughout his or her life. Fetal repair follow-up care at CHOP allows the team to continue to learn from patients’ experiences and progress, and to utilize that knowledge to continue to enhance the lives of other spina bifida patients and their families.

  • Print
  • Share

The Birth of a Breakthrough Video explores spina bifida diagnosis, treatment options, delivery and follow-up care at The Children’s Hospital of Philadelphia. Experts at CHOP’s Center for Fetal Diagnosis and Treatment have the world’s greatest collective experience in prenatal repair for spina bifida.
 

Videos in this Series

Transcript: Fetal Repair Follow-Up Care


Printer Friendly Version

Lori J. Howell, RN: Probably the most expectant time that families have is once they go home. What's going to happen then? And I think that is a major hallmark of our center that we continue to follow these babies.

N. Scott Adzick, MD: It's important to bring all the healthcare professionals to the baby. And so that's what we do in the multidisciplinary spina bifida clinic at CHOP.

Natalie E. Rintoul, MD: The spina bifida program at the Children's Hospital of Philadelphia was the first multidisciplinary program in the world.

N. Scott Adzick, MD: So there's 50 years plus of experience.

Natalie E. Rintoul, MD: It's an interdisciplinary comprehensive spina bifida program that really is geared at long-term management. And there are hundreds of kids in the program as well as adults.

N. Scott Adzick, MD: The follow-up of these babies is very important for their care. But one additional issue and benefit is that these patients teach us.

Lori J. Howell, RN: Only with that ongoing commitment of these parents to share their lives and their children with us are we going to continue to provide that information for future generations.

N. Scott Adzick, MD: There will be more lessons to learn that will enhance care, that will enhance counseling, and that will enhance the choices that families can make.

Contact Us