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Birth of a Breakthrough: Spina Bifida Video - CHOP

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Superior Spina Bifida Treatment: Experience, Innovation, Excellence

CHOP’s level of care for spina bifida – either prenatal or postnatal repair – and follow-up is unparalleled. Our Center for Fetal Diagnosis and Treatment has the world’s greatest collective experience in prenatal repair. Our Spina Bifida Clinicwas the first of its kind in the world. We are committed to providing superior spina bifida treatment for families and children and are dedicated to doing whatever it takes to improve outcomes for children. Our superior spina bifida treatment – truly the birth of a breakthrough – is changing the course of history for spina bifida diagnoses everywhere.

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The Birth of a Breakthrough Video explores spina bifida diagnosis, treatment options, delivery and follow-up care at The Children’s Hospital of Philadelphia. Experts at CHOP’s Center for Fetal Diagnosis and Treatment have the world’s greatest collective experience in prenatal repair for spina bifida.
 

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Transcript: Superior Spina Bifida Treatment: Experience, Innovation, Excellence


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Lori J. Howell, RN: For years, we have continued to focus and refocus all of our efforts on a baby with a birth defect. So when you come to CHOP and the Center for Fetal Diagnosis and Treatment, you have the benefit of all of that expertise.

Susan R. Miesnik, MSN: It's the same team. We've been working with the same people. We're like a finely oiled machine.

Natalie E. Rintoul, MD: So for a family who's carrying a fetus with spina bifida, you really want to go to a place that knows very well and has seen, you know, all the problems that can occur so that there really are no surprises.

Lori J. Howell, RN: Hearing your concerns and being able to answer those questions is incredibly reassuring to families.

Michael Mulligan, father: We'll all face challenges in life. But it's nice to start off without some of those major challenges when you can, you know, have science and medicine come together to make the life better.

Katherine Mulligan, mother: Sean came out with his toes wiggling, kicking and screaming so to speak, and he's been doing that ever since. He runs. He jumps. He plays. He does everything he wants to do.

Michael Mulligan, father: He knows that there's some limitations, but I think he also knows that he's very fortunate. And we don't dwell on the spina bifida, but we don't ignore it either. It's just...

Katherine Mulligan, mother: It's part of our lives.

Michael Mulligan, father: Yeah, it's part of who Sean is. It's no question about that.

Katherine Mulligan, mother: We're very lucky that his quality of life, and ours, is just incredible, absolutely incredible.

Martha G. Hudson, MSW: It's wonderful that we can provide families with all these options and give the families the opportunities to learn everything they can about their babies.

N. Scott Adzick, MD: It takes a team. It takes a multidisciplinary team working in a very collegial, cooperative, fully integrated way.

Leslie N. Sutton, MD: You could not possibly do this surgery without this kind of a team.

N. Scott Adzick, MD: And that sort of experience is irreplaceable.

Leslie N. Sutton, MD: It is volume. It's having patients, steadily doing this, keeping the team sharp. That's critical to the success of this.

Natalie E. Rintoul, MD: It is easy to get excited and be committed when the entire team is committed.

Mark P. Johnson, MD: And I think that's what makes CHOP a really unique place. Very supportive of research. Very supportive of families. Very supportive and focused on doing whatever it takes to improve outcomes for children.

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