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Transposition of the Great Arteries: Grace's Story
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Grace's Story
Trai and Donna describe how they learned during an ultrasound that their baby Grace had transposition of the great arteries (TGA).
Transposition of the Great Arteries (TGA) is a severe congenital condition in which the body’s largest arteries are incorrectly attached to the chambers of the heart. In this 23-minute video, you'll learn how experts from the Fetal Heart Program and Cardiac Center identify TGA during pregnancy, support the baby's delivery, and provide surgery and comprehensive care after birth.
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Transcript: Grace's Story
Donna Lamborne, Mother: We had experienced two miscarriages prior to becoming pregnant with Grace. So once we made it through that 12th, 13th week of the pregnancy we kind of felt like okay, things are great.
Trai Lamborne, Father: We're beyond that hump, that hurdle we hadn't cleared with two miscarriages, and now here it was like great, you know--
Donna Lamborne: --things are looking up.
Trai Lamborne: Yeah, clear sailing from here on out.
Donna Lamborne: So then we approached the 20-week anatomy scan. I went to the doctor's office, and I could tell that the technician was sticking on the heart for a very long period of time. And she left the room and brought in our maternal-fetal medicine doctor and she said, "You know, your baby has a congenital heart defect. And it's referred to as transposition of the great arteries."
Thomas Spray, MD: All of heart surgery is 50 years old, and we've come from a situation of being able to treat nothing to being able to at least deal with most, if not the vast majority, of congenital heart defects in a way that allows children to grow into adulthood.
Jack Rychik, MD: We live in an era where there are very few things that we really can't take care of.
Sarah Tabbutt, MD: For some heart lesions, like transposition, the survival is like almost 100%.
Jack Rychik, MD: We now have young adults who are in their 20s who are doing excellently with, essentially, normal exercise capacity.
Gil Wernovsky, MD: We've with learned quite a bit about what to expect with children with transposition.
Jack Rychik, MD: And as we follow them forward in time there may be new things that we'll learn about them. But the good news is that the vast majority of these patients perform excellently and go on to lead happy healthy lives.
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