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Children share their perspectives on IBD and what it's like living with the pain and symptoms that go along with inflammatory bowel disease.
Life Uncommon is a video series about children and adolescents suffering from IBD and the professionals who care for them at the Center for Pediatric Inflammatory Bowel Disease at The Children's Hospital of Philadelphia.
Robert N. Baldassano, MD: Inflammatory bowel disease is a disease that causes inflammation throughout the intestinal tract. Because of this inflammation, children are unable to eat. They have severe abdominal pain, they have diarrhea. They don't grow.
Aimee E. Christian, PhD: I think it presents hardships that little kids should never have to deal with.
Child 1: I was in the hospital once, and they had to put this tube down my nose, and I didn't like it because I could see yellow stuff going into me.
Child 2: You are getting colonoscopies, sigmoidoscopies. It's awful.
Child 3: You are constantly worried, you know, where is the bathroom, is there a bathroom?
Child 2: You are getting cramps, and you feel just awful. You feel like you'd rather die than go through all that pain.
Child 4: I didn't get to, like, be social and be a kid. I felt like I didn't get to be a kid for two years of my life.
Aimee E. Christian, PhD: Aimee E. Christian, PhD: Part of growing up is trying to be normal. And a lot of these children don't always feel normal.
Child 5: I felt like I was, like, two grades behind and stuff.
Stephanie: Some other people in my class doesn't have it, and I just want to be normal like them.
Child 6: And then being on the medications, and having your appearance change as a girl and I think, I mean, as a guy, too, was really hard.
Child 7: The really rude kids, they say I looked like Gary Coleman, or something like that.
Aimee E. Christian, PhD: It would be even difficult to watch TV. Every other commercial is about food.
Child 8: Sometimes it's hard not eating, but, like, you still get fed, as they say, but you are still a little hungry when the commercials come on and stuff.
Contact the Center for Pediatric Inflammatory Bowel Disease.