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Life Uncommon is a video series about children and adolescents suffering from IBD and the professionals who care for them at the Center for Pediatric Inflammatory Bowel Disease at The Children's Hospital of Philadelphia.
Narrator: New drug therapies are promising, but equally important is the Center's focus in treating the whole child.
Robert N. Baldassano, MD: It's very important that we look at the psychological side of things. We need to teach the children how to cope with the problems that they have. Even maybe more important than that, we need to teach the parents how to cope with the disease.
Parent 1: When Stephanie was diagnosed, it really tore me up. Mainly because I knew all the pain that I went through, and I didn't want to see my daughter go through all of that.
Stephanie: Some people you can't talk to about, but I know that my dad had someone he knew I could talk to about it.
Parent 1: I know it hurts her a lot. But then she uses me as a source of information that I help her along with it.
Stephanie: I just smile and try to hide it in, but I think he knows that I'm trying to hide it in, and I think that it upsets him more.
Parent 1: I feel like I'm selfish because I want her, but I want her perfect.
Contact the Center for Pediatric Inflammatory Bowel Disease.