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Straight Talk | Understanding Scoliosis and Thoracic Insufficiency Syndrome

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Living with scoliosis

Meet Kirsten and Tabitha, who were treated for severe spine curvature at The Children’s Hospital of Philadelphia.

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Transcript: Living with scoliosis


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Sandra Franz, Mother: Kirsten had developed a severe curve in her back. She was only a year old so Dr. Dormans decided to put her in a bending brace. She was in it for approximately two years, two and a half years, and it just didn't work. At that point there was no other option but to do the growing rods.

Michelle Holliman, Mother: Tabitha, she was born with the type of kyphoscoliosis where her spine is just very sharp curve. If she was born 10 years prior, she probably wouldn't be here now. Because that severe scoliosis, that compression with her lungs, they just wither away. She now has a VEPTR system that she had put in when she was four years old. If she never had this implant done she wouldn't be able to function as well as she does now.

John Dormans, MD: Children's Hospital of Philadelphia was the first children's hospital in the United States, founded in 1855. So the hospital's been around a long time and there have been orthopedic disorders as part of the hospital's work dating all the way back to that time.

Robert Campbell, MD: The orthopedic division at CHOP is simply amazing. There's multiple experts in many in areas.

John Dormans, MD: We treat children with the myriad of different conditions and disorders.

Robert Campbell, MD: In particular, though, CHOP has distinguished itself worldwide for its treatment of spine deformity.

John Dormans, MD: And one of the areas that we have a particular expertise and interest in is thoracic insufficiency and early onset scoliosis.

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