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What Families and Physicians Should Know About Teratomas
Teratomas present many challenges to practitioners. In this video series, clinicians from the Center for Fetal Diagnosis and Treatment explain the various types of teratomas, the importance of accurate diagnosis and monitoring, and the most advanced treatment options currently available. They also discuss follow-up care, and long-term outcomes. The video is highlighted by patient stories.
Transcript: Importance of a Specialized Center
Lori J. Howell, RN: Everything we do at the Center for Fetal Diagnosis and Treatment is complicated, it's complex.
Mark P. Johnson, MD: It's really being able to see volumes of these tumors that give us the unique experience, the expertise that, I think, makes us better at managing them.
Lori J. Howell, RN: So for us it seems commonplace. Even dealing with a rare problem such as a teratoma.
N. Scott Adzick, MD: When one has such an environment, it naturally attracts a world-class and worldwide talent pool that all sort of congeal to make the next cohort of advances.
Lori J. Howell, RN: The team that we bring to bear for fetuses with a teratoma is the same team that we bring to bear for every birth defect that we see.
N. Scott Adzick, MD: One needs pediatric surgeons.
Alan W. Flake, MD: -- the maternal-fetal medicine doctors --
N. Scott Adzick, MD: -- the fetal cardiologists --
Alan W. Flake, MD: All of the caretakers that are needed after birth --
the NICU staff, neonatologists --
N. Scott Adzick, MD: --Genetic counselors, advanced practice nurses --
Mark P. Johnson, MD: Lots of family service supports --
Lori J. Howell, RN: -- a coordinator that our families will interact with --
N. Scott Adzick, MD: -- multiple areas of expertise --
Mark P. Johnson, MD: -- to take care of not only the patient, not only the baby, but the family in general.
Victoria Dougherty, parent of Josephine: The practice is so integrated that after a really short period of time, after I kind of got over the initial shock of the diagnosis, I couldn't really imagine wanting to do it anywhere else.
Loraine Kelly, parent of Emily: From the very beginning I was given the best information and the way they walked us through it and they just put me at ease. And it turned out fine, and the result is I have a beautiful, healthy, little girl.
Alan W. Flake, MD: We're all here because we gain intrinsic satisfaction from helping people and helping patients.
Lori J. Howell, RN: Providing families with the education they need in order to make the best decisions about their baby.
Mark P. Johnson, MD: Seeing these kids at the family reunions five years out is what really motivates us, really keeps us focused, really keeps us pushing the envelope.
N. Scott Adzick, MD: And so that's one of the reasons we do what we do. Because that's inspiring, it's really inspiring.
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