The Children's Hospital of Philadelphia
www.chop.edu
What Families and Physicians Should Know About Teratomas — Importance of a Specialized Center

Lori J. Howell, RN: Everything we do at the Center for Fetal Diagnosis and Treatment is complicated, it's complex.

Mark P. Johnson, MD: It's really being able to see volumes of these tumors that give us the unique experience, the expertise that, I think, makes us better at managing them.

Lori J. Howell, RN: So for us it seems commonplace. Even dealing with a rare problem such as a teratoma.

N. Scott Adzick, MD: When one has such an environment, it naturally attracts a world-class and worldwide talent pool that all sort of congeal to make the next cohort of advances.

Lori J. Howell, RN: The team that we bring to bear for fetuses with a teratoma is the same team that we bring to bear for every birth defect that we see.

N. Scott Adzick, MD: One needs pediatric surgeons.

Alan W. Flake, MD: -- the maternal-fetal medicine doctors --

N. Scott Adzick, MD: -- the fetal cardiologists --

Alan W. Flake, MD: All of the caretakers that are needed after birth --

the NICU staff, neonatologists --

N. Scott Adzick, MD: --Genetic counselors, advanced practice nurses --

Mark P. Johnson, MD: Lots of family service supports --

Lori J. Howell, RN: -- a coordinator that our families will interact with --

N. Scott Adzick, MD: -- multiple areas of expertise --

Mark P. Johnson, MD: -- to take care of not only the patient, not only the baby, but the family in general.

Victoria Dougherty, parent of Josephine: The practice is so integrated that after a really short period of time, after I kind of got over the initial shock of the diagnosis, I couldn't really imagine wanting to do it anywhere else.

Loraine Kelly, parent of Emily: From the very beginning I was given the best information and the way they walked us through it and they just put me at ease. And it turned out fine, and the result is I have a beautiful, healthy, little girl.

Alan W. Flake, MD: We're all here because we gain intrinsic satisfaction from helping people and helping patients.

Lori J. Howell, RN: Providing families with the education they need in order to make the best decisions about their baby.

Mark P. Johnson, MD: Seeing these kids at the family reunions five years out is what really motivates us, really keeps us focused, really keeps us pushing the envelope.

N. Scott Adzick, MD: And so that's one of the reasons we do what we do. Because that's inspiring, it's really inspiring.