Why choose CHOP for CAH care
Here at Children's Hospital of Philadelphia (CHOP), we know you have many options when seeking care for your child. Consider these factors when choosing the CAH treatment center that’s the right fit for you and your family:
- Unmatched experience and deep commitment. Since 2016, our program has grown into one of the busiest and most trusted pediatric endocrinology centers devoted to congenital adrenal hyperplasia (CAH). Today, we evaluate and care for nearly 300 children and young adults at various stages of life. Over the years, that volume has allowed us to gain insight into the rare ways CAH can present itself, the varying needs our patients living with CAH have and what long-term outcomes can look like for these children and young adults.
- Multidisciplinary team. Caring for CAH is complex, and we believe it demands a team approach. Our endocrinologists work closely with other CHOP specialists when needed, from divisions like urology, genetics and psychology. All our providers have focused expertise in CAH care. In addition, our dedicated nurse coordinator and administrative team keep you and your family connected, informed and supported from the moment you walk in. We believe families are central members of your child's care team. As your child matures, we also work closely with our adult endocrinology colleagues to ensure a seamless transition from pediatric to adult care, so no one falls through the cracks.
- New treatment innovations. We’re a care center that is focused on progress. Our program actively participates in clinical trials and therapeutic innovation. Most recently, we played a key role in advancing crinecerfont (Crenessity) as a promising new option for children with CAH. With our access to research, your child may experience new therapies and approaches before they become widely available.
- Nationally ranked excellence. Our program is one of nine nationally recognized Comprehensive Centers of Excellence by CARES Foundation. This designation reflects the highest standards in patient care, CAH outcomes and continuous improvement. This recognition is important for your family because it means your child is receiving care from a program that meets the highest standards for CAH treatment in the country.
- Family-centered care. We are committed to helping children with CAH live healthy, full lives by providing:
- Extensive experience - Caring for hundreds of children means we’ve seen nearly every form of CAH. That gives us the knowledge to find what works best for each child.
- Personalized care plans - We use detailed testing and genetic information to create care plans tailored to your child’s specific needs.
- Whole-child approach - We look beyond hormone levels to support every part of your child’s health including physical growth and development, emotional well-being and quality of life.
- Support for families - We provide education, counseling and help with practical needs like insurance, school forms and transition planning.
- Focus on lifelong health - From infancy through adulthood, we stay focused on long-term outcomes, helping each child grow strong and healthy into the future.
Contact the Congenital Adrenal Hyperplasia Program
Endocrinology appointments and referrals
Urology appointments and referrals