Patient Support Groups and Advocacy
Lymphangiomatosis & Gorham’s Disease Alliance; Klippel-Trenaunay Support Group
CaNVAS recognizes the importance of patient and caregiver input in clinical research. We partner with patient advocacy organizations to identify the questions and unmet needs that are most important to those affected by our work. CaNVAS includes advocates as an integral part of defining research priorities and study design. Partnering with patients and integrating their perspectives into our work results in more successful research.
- Lymphatic Education & Research Network
- The Sturge-Weber Foundation
- Lymphangiomatosis & Gorham’s Disease Alliance
- Klippel-Trenaunay Support Group
- Cloves Syndrome Community
- CureHHT
- Project FAVA
- Proteus Syndrome Foundation International
- M-CM Network
- Kennedy’s Cause
- Vascular Birthmarks Foundation
- National Organization of Vascular Anomalies
- Phace Syndrome Community
- WonderFIL Smiles