The PACE Program is located on the 5th floor of the Richard D. Wood Pediatric Ambulatory Care Center at Children’s Hospital’s Main Campus in Philadelphia.
At your child’s first appointment, we will start with a thorough medical history and physical evaluation, including a rectal examination. Your child's evaluation may include a variety of procedures that will help us to confirm the diagnosis and gather a full understanding of her condition. Procedures may include a rectal biopsy, barium enema, MRI or CT scan, colonoscopy and anorectal manometry.
After the initial evaluation, we will review information about your child’s diagnosis and provide educational materials.
We will go over the treatment options available to your child, including surgical and non-surgical management strategies, and will explain any recommended tests and procedures that are appropriate for your child and pertinent to treatment plans.
The PACE Program provides ongoing support and management of your child’s condition as she grows. We do this by:
- Developing and maintain a bowel management program to meet the needs of your child and family. This may include the use of fiber, laxatives or an enema program.
- Providing nutritional and medication information to meet your child’s unique needs.
- Providing educational materials about your child’s condition and treatment that can be shared with family members, schools, or your child’s pediatrician.
- Assisting families in ongoing communication with schools, such as conversations with your child’s teachers, school nurse and others to support your child in the classroom and other activities.
- Assisting families in obtaining appropriate treatments and insurance coverage as needed.