Trisomy 21 Program News and Updates

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Ask the Advocate: You Are Your Loved One’s Best Advocate

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Stephanie Rosati-Pratico, Trisomy 21 Program coordinator, describes her testimony on a proposed bill that would require bus drivers and aides to be trained on how to interact with students with special needs.

Walking Up and Down the Stairs

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Helen Milligan, MPT, physical therapist with the Trisomy 21 Program, describes how to teach children with Down syndrome to walk up and down stairs, and how to overcome stair issues with school.

Sibling Perspective: Diagnosis’ Impact on Families

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When new parents find out their child has been diagnosed with Down syndrome (also known as trisomy 21), one of the immediate concerns is how this will affect their other children, as well as their family dynamic.

Down Syndrome and the Lipid Heart Clinic at CHOP

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Researchers at The Children's Hospital of Philadelphia are studying lipids levels — such as cholesterol and triglycerides — on individuals with Down syndrome (trisomy 21). The Lipid Heart Clinic helps monitor patients who may be predisposed to early heart attack and stroke.

Giulianna’s Heart

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After Kimberly Touch Rinaldi’s third daughter was born with Down syndrome, she collaborated with a jewelry designer to create a necklace to raise awareness for the condition.

Down Syndrome Natural History Study

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The Trisomy 21 Program at CHOP is seeking children and adults with Down syndrome to participate in the Down Syndrome Natural History Study.

12th Annual Children’s Hospital Buddy Walk & Family Fun Day

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2013 marks the 12th Buddy Walk® and Family Fun Day benefiting the Trisomy 21 Program at The Children's Hospital of Philadelphia. Approximately 4,000 moms, dads, grandparents and children from Pennsylvania, Delaware and New Jersey will walk around the track together in the spirit of camaraderie, to promote acceptance and inclusion of people with Down syndrome and celebrate their many accomplishments. 

Decreasing the Challenge of Handwriting

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In a world with ever-advancing technology, handwriting could easily be pushed aside as a less than-important skill, especially if it proves challenging to a child, as is often the case for children with trisomy 21. But technology can also help children gain fine motor skills and increase their independence.

Adult Corner: Who Is Helping You?

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Now that your child with Down syndrome (trisomy 21) is an adult, what do you need to help you? Some parents and caretakers, as they age, can’t do as much as they used to or would like to — both for themselves and for their adult children. Learn what resources are available to help you.

Managing Behavior in Children with Down Syndrome: Part 1

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Like all children, children with Down syndrome are going to present caregivers with challenging behaviors, and they require both clear expectations about “good” behavior and appropriate limit-setting on unacceptable behavior. Your approach will depend on your child’s age, ability, temperament and where the challenging behaviors occur.


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