Trisomy 21 Program News and Updates

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Adult Corner: Who Is Helping You?

Published on in Trisomy 21 Update

Now that your child with Down syndrome (trisomy 21) is an adult, what do you need to help you? Some parents and caretakers, as they age, can’t do as much as they used to or would like to — both for themselves and for their adult children. Learn what resources are available to help you.

Managing Behavior in Children with Down Syndrome: Part 1

Published on in Trisomy 21 Update

Like all children, children with Down syndrome are going to present caregivers with challenging behaviors, and they require both clear expectations about “good” behavior and appropriate limit-setting on unacceptable behavior. Your approach will depend on your child’s age, ability, temperament and where the challenging behaviors occur.

Researching Metabolic Health, Hypothyroidism

Published on in Trisomy 21 Update

The Children’s Hospital of Philadelphia is enrolling children with Down syndrome (trisomy 21) in two clinical studies — one investigating the risks of developing cardiac problems and type 2 diabetes, the other investigating the treatment for subclinical hypothyroidism.

Ask the Advocate: Communicating with Your Child’s School

Published on in Trisomy 21 Update

Creating a "Getting to Know Me" booklet is a good way to share important information about your child with his teachers and therapists, who may change from year to year. You can include medical issues/concerns, as well as his likes/dislikes, what motivates/scares him, and more.

Pool Groups Begin in March

Published on in Trisomy 21 Update

Aquatic therapy is a fun and effective way for children with Down syndrome to develop functional skills, build strength and improve total body coordination and body awareness, and learn water safety.

REACH Your Potential: Next Session March 19

Published on in Trisomy 21 Update

CHOP's REACH Your Potential workshop is designed for youth ages 12 to 20 with Individualized Education Plans (IEPs) and their parents. The program focuses on advocacy in the IEP process, and social opportunities and services available after graduation.

Ask the Advocate: Achieving a Better Life Experience

Published on in Trisomy 21 Update

The Achieving a Better Life Experience (ABLE) Act of 2013 was reintroduced in Congress on Feb. 4 by a bipartisan, bicameral set of Congressional sponsors. This legislation will increase the independence of members of the disability community by allowing them to set aside funds for their daily needs without penalty.