Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.

A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.

Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.

A magazine for parents of children with special needs.

Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.

HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.

A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.

Vascular Malformation advocacy and support. Includes factual information and resources.

Lipedema Foundation focuses on research for cause & effective treatment of lipedema.

Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**