Spinal Muscular Atrophy (SMA) with Acute Respiratory Failure Clinical Pathway — PICU
Transfer/Discharge
Returned to baseline NIV settings and airway secretion clearance regimen
or
Parent and outpatient comfort with continuing wean and airway clearance regimen at homeand
Tolerating feedsEnsure pulmonary consult prior to transfer/discharge.
Note: SMA Type I patients will be discharged to home from the PICU/PCU.