Spinal Muscular Atrophy (SMA) with Acute Respiratory Failure Clinical Pathway — PICU

Transfer/Discharge

Returned to baseline NIV settings and airway secretion clearance regimen

or
Parent and outpatient comfort with continuing wean and airway clearance regimen at home
and
Tolerating feeds


Ensure pulmonary consult prior to transfer/discharge.
Note: SMA Type I patients will be discharged to home from the PICU/PCU.