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Emily Datz, MS, CGC

About Emily Datz, MS, CGC

Titles

Certified Genetic Counselor

Certifications

Certified Genetic Counselor (CGC®) – American Board of Genetic Counseling

Awards and Honors

2019, Thomas Jefferson College of Life Sciences Human Genetics/Genetic Counseling Scholarship
2016, mHealth Challenge Finalist – Engaged Scholarship Event

Leadership and Memberships

Memberships in Professional Organizations

2020-present, National Society of Genetic Counselors
2019-present, American College of Medical Genetics

Education & training

Undergraduate Degree

BS in Biobehavioral Health - The Pennsylvania State University, University Park, PA

Graduate Degree

MS in Human Genetics and Genetic Counseling - Thomas Jefferson University, Philadelphia, PA

Team affiliations

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Publications

PubMed

Publications

2026

Chen A., et al. Onset of Ocular Abnormalities in Children with Hearing Loss. Ophthalmology. 2026. 133, 755-763 

Roman, A. J., et al. A Spectrum of Severity of a Unifying Retinal Phenotype in TUBB4B-Associated Inherited Retinal Degeneration. RETINAL Cases & Brief Reports. 2026. DOI: 10.1097 

2025

Zhong, A., et al. Detailed structural abnormalities associated with a novel VCAN variant in a family with versican vitreoretinopathy. Ophthalmic Genetics. 2025. 46(4), 370–379.  

2024

gelman AD., et al. Characterising the refractive error in paediatric patients with congenital stationary night blindness: a multicentre study. Br J Ophthalmol. 2024 Jul 30:bjo-2023-323747. doi: 10.1136/bjo-2023-323747. PMID: 39079892.

2022

Krauss, E., Macher, J., Capasso, J., Bernhardt, B., Ali-KhanCatts, Z., Levin, A., Brandt, R. Experiences of genetic testing among individuals with retinitis pigmentosa. Ophthalmic Genet. 2022 Jul 7;:1-8. doi: 10.1080/13816810.2022.2096243. PubMed PMID: 35796432.

2021

Iannaccone, A., Alekseev, O., Krauss, E. “Retinitis Pigmentosa.” NORD (National Organization for Rare Disorders), 2021, https://rarediseases.org/rare-diseases/retinitis-pigmentosa/.

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