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On Oct. 4, CHOP's Center for Fetal Diagnosis and Treatment hosted a reunion at the Cleveland Botanical Gardens for families across the Midwest who traveled to CHOP for fetal surgery or specialized care immediately after birth.
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Congenital diaphragmatic hernia (CDH) is a complex and challenging anomaly. Learn about CHOP’s efforts to advance care and improve survival in severely affected children.
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Despite advances in care, there remain high rates of morbidity and mortality in cases of severe CDH. Read about CHOP’s FDA-approved study of fetoscopic endoluminal tracheal occlusion (FETO).
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Neonates with congenital diaphragmatic hernia (CDH) often require intensive treatment after birth and have prolonged hospitalizations, and may suffer a variety of complications after discharge. Comprehensive interdisciplinary follow-up care is critical for long-term well being.
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The Pulmonary Hypoplasia Program at The Children’s Hospital of Philadelphia is committed to tracking outcomes of children with pulmonary hypoplasia in an effort to improve understanding and care. A recent review of neurodevelopmental outcomes at 5 years of age found that CDH survivors are at increased risk for developing emotionally reactive and pervasive developmental problems.
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A special reunion brought together 1,500 people from 22 states; nearly all of the children in attendance were prenatally diagnosed with a birth defect.
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CDH is a complex and challenging anomaly. CHOP is one of only a few U.S. hospitals offering comprehensive care of this condition for both mother and baby.
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Continuity of care from a skilled team is critically important for babies born with Congenital diaphragmatic hernia (CDH). Knowing this, eight years ago, CHOP created the Neonatal Surgical Team.
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At the Center for Fetal Diagnosis and Treatment, we believe one of the most important elements of care is careful diagnostic testing and interpretation of results.
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CHOP's team of clinical coordinators, social workers, child life specialists and psychologists works together to ensure families carrying a baby with CDH feel mentally and emotionally supported every step of the way.