Congenital HI Patient Stories

1 - 10 of 21

Congenital Hyperinsulinism: Alaya's Story

Alaya and Dr. Adzick

Alaya's family traveled from North Carolina seeking the expertise of CHOP’s Congenital Hyperinsulinism Center. She became the 500th baby to have a pancreatectomy at CHOP.

Congenital Hyperinsulinism: Odinn’s Story

Óðinn Orri with his brothers

Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.

Where Atypical Disease Is Not Uncommon: Zoë’s Story

Patient Zoe

Zoë Dueñas’ atypical congenital HI led her parents to CHOP where surgery to remove 15 percent of her pancreas helped stabilize her condition. Since then, Zoë has continued to have normal blood sugar without medication or dextrose.


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