Hereditary Neuroblastoma Resources

The Cellie Cancer Coping Kit, developed by experts at CHOP, includes a stuffed toy, cancer coping cards, and a book for caregivers.

https://www.cancer.org/cancer/cancer-in-children.html

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

https://www.thenccs.org/scholarship

It awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation.

http://www.cancercare.org/

CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.

http://www.cncfhope.org/

The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.

http://www.geneticfairness.org/

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

http://www.curesearch.org/

CureSearch for Children's Cancer contains a wealth of information on diagnosis and treatment of childhood cancer and the late effects of cancer therapy. CureSearch provides educational and coping resources to families affected by childhood cancer.

http://www.ncbi.nlm.nih.gov/books/NBK1116/

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

http://www.cancer.gov/cancertopics/types/childhoodcancers

NCI's website includes links to information about treatment, clinical trials, testing and research.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://stupidcancer.org/

Stupid Cancer is an all-inclusive young adult cancer community that empowers those affected by young adult cancer.

http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.