Hereditary Neuroblastoma Resources

Coping

This tool will help children with cancer and their caregivers learn all the the ways they can use the Cellie Cancer Coping Kit during cancer treatment.


For Patients

The Cellie Cancer Coping Kit, developed by experts at CHOP, includes a stuffed toy, cancer coping cards, and a book for caregivers.


Websites

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

It awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation.

CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

CureSearch for Children's Cancer contains a wealth of information on diagnosis and treatment of childhood cancer and the late effects of cancer therapy. CureSearch provides educational and coping resources to families affected by childhood cancer.

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

NCI's website includes links to information about treatment, clinical trials, testing and research.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.