HLHS Patient Stories

Andrea shares her experience delivering son Caleb in CHOP’s Garbose Family Special Delivery Unit, a unit designed for women carrying babies with known birth defects.

Kylee is a happy and healthy 5-year-old girl thanks in large part to a heart transplant at Children’s Hospital of Philadelphia.

Diagnosed with heart defects before birth, Stosh had heart surgery in utero, three reconstructive procedures in his first four years, then a heart transplant.

Ben was born with hypoplastic left heart syndrome (HLHS) and underwent open heart surgery at CHOP's Cardiac Center.

Francis was born with HLHS, a severe heart defect. After the first two of a staged series of three heart reconstruction procedures, he is doing well.

Jeremy was born with hypoplastic left heart syndrome (HLHS). After a series of three reconstructive surgeries, he’s now an outgoing 5-year-old.

When it was time for Lilly Moore to have her third surgery for HLHS, her parents made the decision to travel 2,300 miles from home to the Cardiac Center at CHOP.

Lily was diagnosed with hypoplastic left heart syndrome (HLHS) and underwent several surgeries at CHOP's Cardiac Center to treat the complex congenital heart defect.