Noonan Syndrome Resources

http://www.geneticfairness.org/

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.