Parry-Romberg Syndrome Resources
Changing Faces us a charity that helps improve the lives of people with craniofacial abnormalities and transform public attitudes toward people with an unusual appearance.
The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.
FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident or birth.
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.