Parry-Romberg Syndrome Resources

https://www.changingfaces.org.uk/Home

Changing Faces us a charity that helps improve the lives of people with craniofacial abnormalities and transform public attitudes toward people with an unusual appearance.

http://www.ccakids.com

The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.

http://www.faces-cranio.org

FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident or birth.

http://www.phillyphaces.org/

Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.