Peutz-Jeghers Syndrome (PJS) Resources
Support and Education Groups
Peutz-Jeghers Syndrome and Juvenile Polyposis Syndrome Online Support Group
PJS and JPS is a free online support group for patients, family, friends, researchers and physicians, to discuss Peutz-Jeghers syndrome and Juvenile Polyposis Syndrome.
Coalition for Genetic Fairness
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
Colon Cancer Alliance
The Colon Cancer Alliance is a nonprofit patient advocacy organization dedicated to increasing colon cancer screening rates and survivorship.
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.