Spina Bifida Patient Stories
11 - 20 of 27
Spina Bifida: Zach’s Story
Zach never let his spina bifida hold him back. He wants to make the world a better place and is raising money and awareness for the condition.
Jayant's Fetal Surgery for Myelomeningocele Story
Jayant’s family traveled from Florida to Children’s Hospital of Philadelphia to seek the most experienced team for prenatal repair of spina bifida.
Fetal Surgery for Spina Bifida: Will’s Story
Six years after prenatal repair of spina bifida, Will walks, runs and jumps, and continues to amaze his parents with all he can do.
Sofia-Rose’s Spina Bifida Fetal Surgery Story
When Alicia and Matthew learned their unborn baby had spina bifida, the prognosis was grim. But the team at CHOP offered them hope through fetal surgery. See how she's doing 3 years later.
Fetal Surgery for Spina Bifida: Mason’s Story
A spina bifida diagnosis led Baylee and Louis to make the trip from their home in Florida to Children’s Hospital of Philadelphia for fetal surgery.
Fetal Surgery for Spina Bifida: Elliana's Story
Elliana and her mom, Nicole, traveled from Michigan to Philadelphia to have fetal surgery for myelomeningocele, the most serious form of spina bifida.
Prenatal Surgery for Spina Bifida: Avery’s Story
After learning her unborn daughter, Avery, had spina bifida, Katie traveled from Maryland to have prenatal surgery at Children’s Hospital of Philadelphia.
Fetal Surgery for Spina Bifida: Scout’s Story
The Watkins family traveled from Florida to Children’s Hospital of Philadelphia so that their unborn baby girl, Scout, could have fetal surgery for spina bifida.
Fetal Surgery for Spina Bifida: Luelle’s Story
Luelle underwent fetal surgery to treat myelomeningocele, the most severe form of spina bifida. Her journey was documented in the PBS series TWICE BORN.
Spina Bifida: No Match for Miah
After learning their unborn daughter had myelomeningocele, the most severe form of spina bifida, Miah’s parents turned to CHOP for care that would allow her to thrive.