Children's Hospital of Philadelphia's (CHOP) Transplant Center invites adolescent organ transplant recipients and their families to sign up for any or all of the four free webinars offered in our series. Speakers will include physicians, social workers, psychologists, and pharmacists who will address topics related to:
- The importance of transition readiness
- Self-management of your health and well-being
- What a successful transition entails
Session 1: Thursday, April 1, 2021, 5–6 p.m.
The Importance of Transition Readiness in the Transplant Patient
Speaker: Jennifer Vittorio, MD
Dr. Vittorio is the director of the PLATINUM (Pediatric Liver to Adult Transition) program at Columbia University. She is also the leader of the American Society of Transplantation (AST) transition working group, which is dedicated to improving the health care transition process for all pediatric solid organ transplant recipients. Dr. Vittorio will be kicking off our series with a presentation about her work and research in transition, and the elements that make for a successful transition to adult care.
In this session, we’ll review common barriers to a smooth transition to adult care and how psychology can help. You’ll learn ways to slowly increase your involvement in your care, including medical decision-making, organizing your medications and follow-up appointments, and overall self-management of your health and well-being. We know that having a chronic medical condition is stressful and that taking care of yourself involves more than just taking your medications, so we’ll also review some ways to manage that frustration and offer recommendations for recognizing when working with a psychologist might be helpful.
Jennifer Hewlett, transplant pharmacist, will discuss medication adherence and concerns from a teen perspective that might affect medication adherence. Dr. Sheila Quinn from adolescent medicine will discuss issues that are specifically adolescent-related, including discussion of risk behaviors. This session is most appropriate for ages 14 and up will address topics that are PG-13!
Session 4: Thursday, July 8, 2021, 5–6 p.m.
Discussion with Providers and Patients: Guideposts for the Transfer to Adult Care
In addition to presentations, our final webinar will consist of breakout sessions for each organ group (heart, lung, liver, kidney) where patients and families will get the chance to participate in discussions with adult care providers and patients who have recently transitioned to adult care. Social workers will facilitate the session, adult providers will discuss their expectations of adult patients, and recently transitioned patients will provide insight on what the transition process was like for them. Patients will have the opportunity to ask and submit questions ahead of time.
Reminder: When you register, there will be an opportunity to provide questions about the sessions. They will be answered to the best of the speakers' ability at the end of each session.