Pediatric Pituitary Brain Tumor Day

Leonard and Madlyn Abramson Pediatric Research Center
3615 Civic Center Boulevard, First Floor, Rooms ABC-123, Philadelphia, PA 19104  

girl outside smiling ***The well-being of our patients, families and staff is our utmost priority. In light of new guidelines designed to reduce the potential for unnecessary exposure to COVID-19, we have suspended all campus-wide events for now. As a result, this event has been postponed.***

The Neuroendocrine Center at Children’s Hospital of Philadelphia invites you to this day-long, family-focused workshop of learning and sharing about endocrine and other issues that occur in children with pituitary brain tumors. The day will include CHOP and outside speakers, breakout sessions and opportunities to connect with each other. Kids are included. Activities will be available for kids 6 and up. We will also offer breakout sessions for adolescents (13 and up).

Cost

  • Early Bird (by Sunday, March 15): $20 per adult
  • Regular (after Sunday, March 15): $40 per adult
  • Dinner (optional): $20 per adult

Registration includes breakfast, lunch and parking. Children are free, but still need to be registered.

Agenda

  • 8:30am - 8:45am
    Parent Welcome: Amy Wood and Catherine Chiang
    Provider Welcome: Craig Alter, MD - CHOP
  • 8:45am - 9:30am
    Round Up of Latest Findings in Pituitary Tumors and Clinical Trials
    Shana McCormack, MD, MTR - CHOP
  • 9:30am - 10:30am
    Hypothalamic Obesity
    Christian Roth, MD - Seattle Children’s
  • 10:30am - 11am: Break
  • 11am - 12pm
    Self-Care for Caregivers
    Janet Deatrick, PhD, RN, FAAN - Penn
  • 12pm - 12:45pm: Lunch
  • 12:45pm - 1:30pm: Break Out Session 1
    • Pituitary 101- Tour of the Pituitary Hormones
      Craig Alter, MD - CHOP
    • Transition to Adult Care
      Adam Greenberg, MSN, CRNP - CHOP
    • Teen Roundtable with MINT
      Symme W. Trachtenberg, MSW and Natalie Stollon, MSW, MPH - CHOP
  • 1:40pm - 2:25pm: Break Out Session 2
    • Working with Your Child's School: What they Need to Know to Help Your Child Be Successful
      Barbara Obst, RNMS - Kennedy Krieger Institute
    • Transitioning to Adulthood: Female Fertility Innovations
      Suneeta Senapati, MD, MSCE
    • Transitioning to Adulthood: Testosterone Replacement and Fertility Innovations
      Christopher Gibson, MD - CHOP
  • 2:35pm - 3:20pm: Break Out Session 3
    • Working with Your Child's School: What they Need to Know to Help Your Child Be Successful
      Barbara Obst, RNMS- Kennedy Krieger Institute
    • Hypothalamic Obesity Nutrition Management
      Marci Serota, RDN
    • Transitioning to SSI/ Medicaid
      Terri Al-Hadi, MSW - CHOP
  • 3:30pm - 4pm
    Q&A Session: Providers and Parents
  • 4pm - 5pm
    Self-Care Demonstrations: Meditation and Yoga
    Linda Shikitino and Dee Kim Tessler, Certified yoga Instructors
  • 5pm: Dinner

Hotel information

A block of rooms has been reserved at the Sheraton Philadelphia University City Hotel, 3549 Chestnut St., Philadelphia, PA 19104, located three blocks from the hospital. The group rates are $169 traditional room occupancy, plus a 16.37 percent room tax. To make reservations, contact the Sheraton University City Hotel directly at 888-627-7071 or 215-387-8000, and be sure to mention the name of the conference when you make your reservations. The special rate will be available until April 1, 2020.

Contact information

If you have questions, please contact Sharon Edwards at EdwardsS@email.chop.edu.