We hope you will join us for a day of learning designed for families navigating this lifelong heart condition. The 2026 Phillips Family Single Ventricle Education Day is an in-person event hosted by the FORWARD (FOntan Rehabilitation, Wellness, Activity, and Resilience Development) Program at Children’s Hospital of Philadelphia (CHOP).

We welcome parents and caregivers of single-ventricle patients, as well as patients ages 13 and older.

In addition to educational sessions, families will have the chance to meet and connect with others in the single-ventricle (SV) community. You’re not alone on this journey!

Breakout sessions tailored to SV patients will help them understand and prepare for a seamless transition from pediatric to young-adult care.

Among the topics we’ll discuss are:

• Understanding the Single Ventricle journey: What to expect from diagnosis through surgerie
• Approaching exercise: Tips on managing energy levels with a Fontan
• Forging bonds: Advice for navigating relationships and friendships within the SV community
• Being your best advocate: How to build rapport with your SV team and manage your medication

A light breakfast, snacks and lunch will be served including Kosher and vegetarian options. 

Please RSVP by Friday, September 25, 2026.

For questions contact Sara Baumgarten at baumgartes@chop.edu.