Frequently Asked Questions about the Acquired Autonomic Dysfunction Program

Answers to common questions about appointments at our program.

Do I need a referral to be seen in AADP?

All initial evaluations for autonomic dysfunction begin through CHOP’s Diagnostic and Complex Care Center. If your child is diagnosed with acquired autonomic dysfunction and AADP is the appropriate program, the Diagnostic Center team will place the referral directly.

For families seeking a second opinion, please review our AADP second opinion process.

Will my child need blood work or other tests completed prior to their initial AADP visit?

No, your child will not need blood work or other tests prior to their CHOP visit. However, we do ask for copies of any lab results completed within the past year, as well as all genetic testing and specialty labs your child has had. This helps us avoid repeating tests and ensures we have a complete picture of your child’s health.

Will my child be scheduled for Tilt Table Testing?

No. We utilize the 10-Minute Active Stand Test within our multidisciplinary clinic instead of a Tilt Table Test. Both tests are designed to evaluate how your body responds to changes in position, but the 10-minute active stand test is often more reliable for understanding real-life symptoms. Here’s why:

It reflects everyday activity: An active stand test measures your body’s response when you move from lying down to standing on your own — just like you do in daily life. This gives us a more accurate picture of how your autonomic nervous system works during normal activities. Many symptoms of autonomic dysfunction, such as dizziness, rapid heart rate or fatigue, occur when you’re standing and moving. The active stand test helps us see these changes in a natural setting, making it easier to connect test results to what you experience every day.

Less “artificial” stress: A tilt table test uses straps and a motorized table to keep you upright without engaging your muscles. This can create an artificial situation that doesn’t reflect how your body normally functions. Standing actively uses your muscles, which is important for blood flow and symptom assessment.

Safe and efficient: The active stand test is simpler, quicker and doesn’t require special equipment. It’s safe and can be done in a clinic setting without the risks sometimes associated with a tilt table test.

At what locations can I schedule the in-person AADP visits?

All in-person AADP appointments take place at the CHOP Buerger Center for Advanced Pediatric Care located at 3500 Civic Center Blvd., Philadelphia, PA 19104.

Will my child receive follow-up care through AADP if we live out of state?

For out-of-state second opinion families, AADP visits are generally offered as one time consultations, with ongoing care supported through your child’s local medical team. Our providers will share recommendations and coordinate with local clinicians. When clinically indicated, additional follow up within AADP may be considered in accordance with state based licensing requirements.

How can I contact my AADP providers between visits?

For any nonurgent questions or concerns, please contact AADP through MyCHOP. You can find us listed in the message dropdown menu under “AADP.” Messages sent directly to individual providers do not always reach the team. For phone support, you can call our main number: 267-4260-0304.

For urgent medical concerns or routine medical care needs, please contact your primary care provider.

For emergencies, call 911 or go to the nearest Emergency Room.