Luelle, who underwent fetal surgery for spina bifida.
Early in her pregnancy, Shelly and her husband Bobby Ross learned that their unborn baby girl had spina bifida, a birth defect in which the spinal column doesn’t form properly. After doing a lot of research they turned to The Children’s Hospital of Philadelphia to find out if they were candidates for fetal surgery. Prenatal repair of myelomeningocele, the most serious form of spina bifida, involves closing the hole in the baby’s spine while she is still in the womb to prevent further damage.
The Ross family’s experiences, including fetal surgery and delivery of their daughter Luelle, are chronicled in a three-part documentary airing on PBS on March 31, April 7 and April 14, 2015. “Twice Born: Stories from the Special Delivery Unit” follows several families as they face the prenatal diagnosis of birth defects and make decisions about life-changing procedures.
Learn more about Shelly’s fetal surgery experience and find out how Luelle is doing today.