CHOP Recognized as Center of Excellence for Bladder and Cloacal Exstrophy

Published on in CHOP News

Award presentation/group photo Members of CHOP's Division of Urology accept the Center of Excellence recognition from the A-BE-C. Children’s Hospital of Philadelphia (CHOP) is now officially recognized as a Center of Excellence in the treatment and care of patients with bladder exstrophy and cloacal exstrophy by the Association for the Bladder Exstrophy Community (A-BE-C).

The A-BE-C launched its Centers of Excellence program with the goal of shortening the time it takes families to find complete, effective care for children born with bladder or cloacal exstrophy.

CHOP is one of the first eight U.S. hospitals to meet the rigorous criteria.

What it takes to qualify as a Center of Excellence for bladder and cloacal exstrophy

Because bladder and cloacal exstrophy are so rare, many physicians have never heard of it and lack the knowledge and experience to make effective referrals. The goal of the A-BE-C is to bring more consistent care, education and resources to all individuals living with bladder exstrophy.

The Centers of Excellence program is the first to identify criteria for the highest standards of treatment for bladder exstrophy and cloacal exstrophy, including post-operative and long-term care. By sharing information on clinical advances and research initiatives, the goal is to elevate the standard of care for all children with bladder and cloacal exstrophy.

Learn more about this criteria and the A-BE-C.

Bracken Bladder Extrophy

Bracken’s Story

Born with his bladder outside of his body (bladder exstrophy), Bracken faced significant challenges. His family found help and healing at Children’s Hospital of Philadelphia.

Bladder Exstrophy Female and Male

Bladder Exstrophy

Bladder exstrophy is a rare disorder that occurs early in fetal development. The bladder does not develop normally and is exposed through an opening in the abdominal wall.