Published on in In Utero Insights
Our clinical research team is involved in a number of prospective and retrospective studies of disorders that occur during fetal development. The clinical research team includes:
- Sheila M. Kelly, MPH: Manages a team of Clinical Research Coordinators (CRCs) and Research Assistants (RAs) and provides administrative support to Mark Johnson, MD, MS, who leads the Center for Fetal Diagnosis and Treatment (CFDT) and Division of General, Thoracic and Fetal Surgery Scientific Review Committee
- Samantha E. Adams, MS, CRC III: Coordinates pulmonary hypoplasia projects, including the Pulmonary Hypoplasia Program (PHP) registry, PHP 8- to 13-year-old follow-up program, fetoscopic endoluminal tracheal occlusion (FETO) and tracheal occlusion to accelerate lung growth (TOTAL) trial
- Alexandria R. Budney, MPH, CRC II: Coordinates psychosocial research projects
- Christine J. Manta, MS, RD, CRC II: Coordinates research related to monochorionic twins
- Jillian M. Jatres, MS, CRC I: Coordinates myelomeningocele projects, providing research support to the North American Fetal Therapy Network (NAFTNet)
- Rosa Hwang, BS, CRC I: Supports general surgery projects and research related to monochorionic twins
- Erica L. Stair, BA: Provides general research support to multiple projects but primarily the PHP 8–13 follow-up program
While the bench research pursued by our Center for Fetal Research is critical for innovation, we also rely on clinical outcomes information from our Center for Birth Defects Outcomes to inform how/what we research, how we counsel and care for patients, and how we adapt our care models to improve care going forward.
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