Special Care for Special Families

Families are at the center of several special events and programs organized by a variety of specialties at CHOP.

Cerebral Palsy Family Day combines education with recreation for children with cerebral palsy and their families.

Girls with Turner syndrome and their families are invited to an annual Spring Fling that offers fun activities and sessions on how to better cope with the condition.

The Cooley’s Anemia Program offers educational presentations to populations at-risk for this inherited disorder.

The Cystic Fibrosis Center provides education for newly diagnosed patients and their families that covers health and social issues for the growing child and adolescent, transition from adolescent to adult programs, and information on new therapies.

The Pediatric Stroke Program staff facilitates support groups for families and siblings of children who have had a stroke.

Many other CHOP staff support their patients by facilitating education sessions and participating in community events, like walks or bike rides, held by disease-specific foundations and organizations.

For example, clinicians from the Division of Neurology have participated in the Epilepsy Foundation’s Summer Stroll, Annual Epilepsy Walk, Mikes for Migraine Walk, Muscle Summit, and Ride Ataxia. These events support a variety of services that help patients cope with their neurological disorders.

Providers in the Center for Childhood Communication walk side by side with patients and families in the annual Walk4Hearing, sponsored by the Hearing Loss Association of America Pennsylvania Chapter.