Spina Bifida Patient Featured on Seeking Solutions with Suzanne

Published on

During an 18-week ultrasound, Shelly and Bobby found out that their baby, Luelle, might be born paralyzed. Luelle was diagnosed with spina bifida, a birth defect in which the spinal cord coverings fail to develop properly leaving the nerves in the spine exposed to toxic amniotic fluid. The family was referred to the Center for Fetal Diagnosis and Treatment (CFDT) at Children’s Hospital of Philadelphia (CHOP).

At CHOP, Dr. Scott Adzick, founder and Director of the center, and his team discovered that Luelle had a build-up of fluid in her brain, one factor that qualified Luelle for fetal surgery.

Thanks to CHOP, Luelle will continue to grow and have an active, healthy life.

Watch Luelle’s story, featured on Seeking Solutions with Suzanne.

Screenshot of CFDT tour video

Tour our Fetal Center

Watch this video tour to learn what to expect at your first visit to the Wood Center for Fetal Diagnosis and Treatment.

Pregnant Mom and Child

What to Expect

From the moment of referral through delivery and postnatal care, your family can expect a supportive experience when you come to us with a diagnosis of a birth defect.

You Might Also Like

A Bright Light

Find out how Luelle, one of the children featured in the PBS series TWICE BORN, is doing now, 6 years after fetal surgery for spina bifida.


Florida to Philadelphia for Fetal Surgery

Elizabeth likes to say her daughter, Scout, was born twice — the first time during prenatal surgery for spina bifida.

Spina Bifida Patient Miah

"Fetal Surgery was Miah's best shot."

Miah is an energetic, talkative 7-year-old who doesn’t let anything get in her way.