Spina Bifida Patient Featured on Seeking Solutions with Suzanne

Published on in CHOP News

During an 18-week ultrasound, Shelly and Bobby found out that their baby, Luelle, might be born paralyzed. Luelle was diagnosed with spina bifida, a birth defect in which the spinal cord coverings fail to develop properly leaving the nerves in the spine exposed to toxic amniotic fluid. The family was referred to the Center for Fetal Diagnosis and Treatment (CFDT) at Children’s Hospital of Philadelphia (CHOP).

At CHOP, Dr. Scott Adzick, founder and Director of the center, and his team discovered that Luelle had a build-up of fluid in her brain, one factor that qualified Luelle for fetal surgery.

Thanks to CHOP, Luelle will continue to grow and have an active, healthy life.

Watch Luelle’s story, featured on Seeking Solutions with Suzanne.


Next Steps
Pregnant Mom and Child

Choosing a Fetal Treatment Center

Know what questions to ask when considering fetal surgery so you can make an informed decision that is right for you and your baby.

Pregnant Mom and Child

What to Expect

From the moment of referral through delivery and postnatal care, your family can expect a supportive experience when you come to us with a diagnosis of a birth defect.


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