Vanessa Battista, MS, RN, CPNP Vanessa Battista, MS, RN, CPNP, is a nurse practitioner with the Neuromuscular Program at Children's Hospital of Philadelphia. Locations: Main Campus Appointments and Referrals: 1-800-TRY-CHOP (1-800-879-2467) Education and Training ResidencyIntegrative Medicine - University of Arizona, Tucson, AZ Additional TrainingCertificate in Pastoral Ministry - Boston College School of Theology and Ministry, Chestnut Hill, MA Board CertificationBasic Life Support (BLS)Certified Birth DoulaCertified Clinical Research Coordinator (CCRC)Certified Pediatric Nurse Practitioner - Primary Care (CPNP-PC)Pediatric Advanced Life Support (PALS)Undergraduate DegreeBSN - Columbia University School of Nursing, New York, NY BA in Psychology - Boston College, Chestnut Hill, MA Graduate DegreeMSN - Columbia University School of Nursing, New York, NY Titles and Academic Titles Nurse Practitioner Conditions Treated Myasthenia Gravis Muscular Dystrophy Spinal Muscular Atrophy (SMA)Guillain-Barre Syndrome in ChildrenJuvenile Dermatomyositis Departments and Services Neuromuscular ProgramDivision of Neurology Publications Papers2018 Paice, J.A., Battista, V., Carol Ann Drick, C.A., & Schreiner, E. Leading Change and Transforming Primary Palliative Care: Nursing’s Role in Providing Pain and Symptom Management. Journal of Hospice and Palliative Nursing. J Hosp Palliat Nurs. 2018 Feb;20(1):30-35. doi: 10.1097/NJH.0000000000000405. 2016 Ferrell, B., Wittenberg. E., Battista, V. & Walker, G. (2016). Nurses’ Experiences of Spiritual Communication with Seriously Ill Children. Journal of Palliative Medicine, 19(11), 1166-1170. Ferrell, B., Wittenberg. E., Battista, V. & Walker, G. (2016). Exploring the spiritual needs of families with seriously ill children. International Journal of Palliative Nursing, 22(8), 388-394. Waldman, E. & Battista, V. (2016, Fall). Find the Lost Voice: The Role of Pediatric Palliative Care in Advocating for Children Who Cannot Speak for Themselves. American Academy of Hospice and Palliative Medicine, Quarterly, Ethics, 17(3). Retrieved from http://aahpm.org/quarterly/fall-16-ethics Battista, V. & Feudtner, C. (2016). Threats to parents’ roles during the process of their child dying in the paediatric intensive care unit. Evidence Based Nursing, 0, 1-2. Doi: 10.1136/eb-2015-102297. 2015 Santucci, G. & Battista, V. (2015). Methylnaltrexone for opioid-induced constipation in patients at the end of life. International Journal of Palliative Nursing, 21(4), 162-164. 2014 Mandac, C. & Battista, V. (2014). Contributions of Palliative Care to Pediatric Patient Care. Seminars in Oncology Nursing, 30(4), 212-226. Santucci, G., Battista, V., & Kang, T. (2014). Caring for the Infant With Trisomy 18: The Bioethical Implications of Treatment Decisions on Nurses. Journal of Hospice and Palliative Nursing, 16(7), 388-393. 2012 Kaufmann, P., McDermott, M.P., Darras, B.T., Finkel, R.S., Sproule, D.M., Kang, P.B., Oskoui, M., Constantinescu, A., Gooch, C.L., Foley, A.R., Yang, M.L., Tawil, R., Chung, W.K., Martens, W.B., Montes, J., Battista, V., … De Vivo, D.C. (2012). SMA-MAP: a plasma protein panel for spinal muscular atrophy. Neurology, 79(18), 1889-1897. 2011 Kaufmann, P., Engelstad, K., Wei, Y., Kulikova, R., Oskoui, M., Sproule, D.M., Battista, V., De Vivo, D.C. (2011). Natural history of MELAS associated with mitochondrial DNA m.3243A>G genotype. Neurology, 77(22), 1965-1971. Sproule, D.M., Punyanitya, M., Shen, W., Dashnaw, S., Martens, B., Montgomery, M., Montes, J., Battista, V., Finkel, R., Darras, B., De Vivo, D.C., & Kaufmann, P. (2011). Muscle volume estimation by magnetic resonance imaging in spinal muscular atrophy. Journal of Child Neurology, 26(3), 309-317. 2010 Wang, C. H., Bonnemann, C. G., Rutkowski, A., Sejersen, T., Bellini, J., Battista, V., ... Zeller, R. (2010). Consensus Statement on Standard of Care for Congenital Muscular Dystrophies. Journal of Child Neurology, 25(12) 1559-1581. Parsons, T., Weimer, L., Engelstad, K., Linker, A., Battista, V., Wei, Y., Hirano, M., DiMauro, S., De Vivo, D.C., & Kaufmann, P. (2010). Autonomic symptoms in carriers of the m.3243A>G mitochondrial DNA mutation. Archives of Neurology, 67(8), 976-979. Sproule, D.M., Montes, J., Dunaway, S., Montgomery, M., Battista, V. Koenigsberger, D., Martens, B., Shen, W., Punyanitya, M., Benton, M., Butler, H., Caracciolo, J., Mercuri, E., Finkel, R., Darras, B., De Vivo, D.C., & Kaufmann P. (2010). Adiposity is increased among high-functioning, non-ambulatory patients with spinal muscular atrophy. Neuromuscular Disorders, 20(7), 448-52. Sproule, D.M., Montes, J., Dunaway, S.L., Montgomery, M., Battista, V., Shen, W., Punyanitya, M., De Vivo, D.C., & Kaufmann P. (2010). Bioelectrical impedance analysis can be a useful screen for excess adiposity in spinal muscular atrophy. Journal of Child Neurology, 25(11), 1348-1352. Dunaway, S., Montes, J., Montgomery, M., Battista, V., Koo, B., Marra, J., De Vivo, D., Hynan, L., Iannaccone, S., & Kaufmann, P. (2010). Reliability of telephone administration of the PedsQL™ Generic Quality of Life Inventory™ and Neuromuscular Module™ in spinal muscular atrophy (SMA). Neuromuscular Disorders, 20, 162-165. 2009 Sproule, D.M., Montes, J., Montgomery, M., Battista, V., Koenigsberger, D., Shen, W., Punyanitya, M., & Kaufmann, P. (2009). Increased fat mass and high incidence of overweight despite low body mass index in patients with Spinal Muscular Atrophy, Neuromuscular Disorders, 19(6), 391-396. Kaufmann, P., Engelstad, K., Wei, Y., Kulikova, R., Oskoui, M., Battista, V., Koenigsberger, D. Y., Pascual, J. M., Sano, M., Hirano, M., DiMauro, S., Shungu, D. C., Mao, X. & De Vivo, D. C. (2009). Protean phenotypic features of the A3243G mitochondrial DNA mutation. Archives of Neurology, 66(1), 85-91. 2008 Battista, V. (2008). The value of a mentor. There’s always something more to learn. Advanced Nurse Practitioners, 16(9), 108. 2007 Gordon, P. H., Wang, Y., Doorish, C., Lewis, M., Battista, V., Mitsumoto, M., & Marder, K. (2007). A screening assessment of cognitive impairment in patients with ALS. Amyotrophic Lateral Sclerosis, 8(6), 362-365. Mitsumoto, H., Ulug, A. M., Pullman, S. L., Gooch, C. L., Chan, S., Tang, M. X., Mao, X., Hays, A. P., Floyd, A. G., Battista, V., Montes, J., Hayes, S., Dashnaw, S., Kaufmann, P., Gordon, P. H., Hirsh, J., Levin, B., Rowland, L. P., Shungu, D. C. (2007). Quantitative objective markers for upper and lower motor neuron dysfunction in ALS. Neurology, 68(17), 1402-1410. Kaufmann, P., Levy, G., Montes, J., Buchsbaum, R., Barsdorf, A. I., Battista, V., Arbing, R., Gordon, P. H., Mitsumoto, H., Levin, B., & Thompson, J. L. (2007). Excellent inter-rater, intra-rater, and telephone-administered reliability of the ALSFRS-R in a multicenter clinical trial. Amyotrophic Lateral Sclerosis, 8(1), 42-46. 2006 Mitsumoto, H., Floyd, A., Tang, M. X., Kaufmann, P., Battista, V., Hristova, A., & Pullman, S. L. (2006). Transmagnetic Magnetic Stimulation for upper motor neuron involvement in amyotrophic lateral sclerosis (ALS). Supplementation to Clinical Neurophysiology, 59, 327-332. Levy, G., Kaufmann, P., Buchsbaum, R., Montes, J., Barsdorf, A., Arbing, R., Battista, V., Zhou, X., Mitsumoto, H., Levin, B, & Thompson, J. L. (2006). A two-stage design for a phase II clinical trial of coenzyme Q10 in ALS. Neurology, 66(5), 660-663. 2005 Kaufmann, P., Levy, G., Thompson, J. L., Del Bene, M. L., Battista, V., Gordon, P. H., Rowland, L. P., Levin, B., & Mitsumoto, H. (2005). The ALSFRSr Predicts Survival Time in an ALS Clinic Population. Neurology; 64(1), 38-43. BooksChapters 2017 Battista, V. (2017). An Overview of Hospice and Palliative Care in the Pediatric Patient. In G. Santucci (Ed). Core Curriculum for the Pediatric Hospice and Palliative Nurse, 2nd edition. Pittsburgh, PA, Hospice and Palliative Nurses Association. Battista, V. & Thaxton, C.A. (2017). Pediatric Palliative Care. In P.J. Coyne, B. Bobb, & K. Plakovic (Eds). Conversations in Palliative Care, Questions and Answers with the Experts, fourth edition. Pittsburgh, PA, Hospice and Palliative Nurses Association. 2016 Battista, V. & Santucci, G. (2016). Presenting Pediatric Palliative Care as a Model of Care for the Hospitalized Child. In C. Dahlin, P.J. Coyne, & B. R. Ferrell (Eds). Oxford Textbook of Advanced Practice Palliative Nursing. New York, NY, Oxford University Press. 2015 Battista, V. & LaRagione, G. (2015). Pediatric Hospice and Palliative Care. In B. R. Ferrell & N. Coyle (Eds.), Oxford Textbook of Palliative Nursing, Fourth Edition. New York, NY, Oxford University Press. 2014 Battista, V. & Mosher, P.J. (2014). Palliative Care for the Infant, Child, or Adolescent with Spinal Muscular Atrophy (SMA). In V. Ferguson (Ed.), Pediatric Life-Limiting Conditions. Pittsburgh, PA, Hospice and Palliative Nurses Association. 2013 Battista, V., Santucci, G., DeSanto-Madeya, S., & Grace, P. (2013). Nursing Ethics and Advanced Practice: Palliative and End-Of-Life Care Across the Lifespan. In P. Grace (Ed.), Nursing Ethics and Professional Responsibility in Advance Practice, Second Edition. Burlington, MA, Jones and Bartlett Learning. 2009 Battista, V. (2009). Muscular Dystrophy, Duchenne. In P. J. Allen & J. A. Vessey (Eds.), Primary Care of the Child with a Chronic Condition, Fifth Edition. St. Louis, MO, Mosby. Posters and Presentations2017 Battista V. American Academy of Hospice and Palliative Medicine, Phoenix, AZ. Pre-Conference Workshop: “The Doctor is In: Part Two”. February 2017. Ferrell, B., Wittenberg, E., Battista, V., & Walker, G. “Nurses’ Experiences of Spiritual Communication in Seriously-Ill Children” American Academy of Hospice and Palliative Medicine (AAHPM)/Hospice and Palliative Nurses Association (HPNA) Annual Assembly, Phoenix, AZ, February 2017. Invited Lectures 2018 Battista V. 19th Annual CHOP APP Conference, Philadelphia, PA. Global Approach to Pediatric Healthcare- Primary Acute, and Behavioral Health: “Clinical Aromatherapy: An Introduction to the Safe Use of Essential Oils”. May 2018. Battista V. Hospice and Palliative Nurses Association (HPNA), Pittsburgh, PA. Webinar: APRN Education Series: “Integrative Therapies in Pediatric Palliative Care”. February 2018. Battista V. University of Pennsylvania School of Nursing, Philadelphia, PA. N567: An Evidence-based Approach to Managing Symptoms in Advanced Illness: “Pediatric Pain and Symptom Management”. February 2018. Battista V. Parent Project Muscular Dystrophy (PPMD), Fort Myers, FL. Duchenne Clinician Conference: “Palliative Care: When Should the Palliative Care Team Be Included in the Neuromuscular Team?”. January 2018. 2017 Battista V. Certified Pediatric Nurse Exam Review Course, Philadelphia, PA. Exam Review Lecture: “End of Life Care”. October 2017. Battista V. University of Pennsylvania School of Nursing, Philadelphia, PA. Palliative Care Class (N557): “Pediatric Palliative Care: Patients and Families Are Ready, Are We?”. October 2017. Battista V. Columbia University School of Nursing, New York, NY. APN Palliative Care Program: “Pediatric Palliative Care for the Child with a Chronic Illness”. October 2017. Battista V. Shanghai International Conference Center, Shanghai, China. 3rd Shanghai International Nursing Conference “Pediatric Palliative Care: Where Have We Been, and Where Are We Going?”. September 2017. Battista V. University of Pennsylvania School of Nursing, Philadelphia, PA. Filmed Online Module for Hybrid N557: “Palliative Care Considerations in the Pediatric Population”. August 2017. Battista V. CureSMA (Spinal Muscular Atrophy), Annual Meeting, Orlando, FL. Workshop Facilitator: “Making Choices to Optimize Care and Quality of Life”. Workshop Facilitator: “Ethics and Realities in SMA Research and Emerging Therapies”. June 2017. Awards and Honors 2012, Hospice and Palliative Nurses Association (HPNA) Volunteer Award 2012, Pediatric End-of-Life Nursing Education Consortium (ELNEC) Award 2011, Distinguished Young Alumni Award Recipient, Columbia University School of Nursing Alumni Association 2008, Scholarship Recipient for Post Graduate Certificate in Palliative Care, Columbia University School of Nursing 2008, Association of Child Neurology Nurses (ACNN) Education Travel Award, Recipient for Attendance at the Annual Meeting in Santa Clara, CA Editorial and Academic Positions Editorial Positions Neuromuscular Disorders Muscle and Nerve The Journal of Hospice and Palliative Nursing Academic and Institutional Committees 2017-present, Ethics Committee 2015-present, Complementary Healthcare Program - 2015-present, Leadership Committee and Aromatherapy Group Leader 2010-present, Protocol Review Committee Member (PRC): Rare Disease Clinical Research Network (RDCRN) 2009-present, Families of Spinal Muscular Atrophy (FSMA)CureSMA, Medical Advisor Council (MAC) Leadership and Memberships Memberships in Professional Organizations 2008-present, Sigma Theta Tau International, Honor Society of Nursing 2007-present, Hospice and Palliative Nurses Association 2006-present, National Association of Pediatric Nurse Practitioners - 2012-present, Founder and Chair, Pediatric Palliative Care Special Interest Group Patient Experience Ratings About the Patient Experience Rating System The Patient Experience Rating is an average of all responses to the care provider related questions shown above from our nationally-recognized Press Ganey Patient Satisfaction Survey. Patients that are treated in outpatient or hospital environments may receive different surveys, and the volume of responses will vary by question. Responses are measured on a scale of 1 to 5 with 5 being the best score. We are committed to true transparency. However, to ensure the comments are fair and correctly attributed, we review each one before posting to the website. We exclude entire comments that disclose patient's protected health information, are off-topic, or include other confidential or inappropriate content. Comments will appear on provider bios only if providers have a minimum number of comments. Comments are shared internally for education purposes to ensure that we are doing our very best for the patients and families for whom we are privileged to care. The comments are submitted by patients and families and reflect their views and opinions. The comments are not endorsed by and do not reflect the views of Children’s Hospital of Philadelphia.