CHOP-wide Obesity Registry

Faculty Lead: Christopher B. Forrest, MD, PhD

Using electronic health records, we are extracting obesity-related data from patient records in the Healthy Weight Clinic and CHOP's network of primary care practices. We will also ultimately obtain data from specialty care, emergency medicine and inpatient locations.

The registry will be a longitudinal record of anthropometric and other data including patient-reported information (e.g., physical activity, positive affect, body image, etc.) on patients seen at CHOP and will advance our understanding of operational efficiencies as well as clinical outcomes.

Recently, CHOP was awarded the National Pediatric Learning Health System (PEDSNet) grant (PI: Forrest) by Patient-Centered Outcomes Research Institute (PCORI) to lead a national childhood obesity initiative in collaboration with seven other children’s hospitals of the country.  CHOP will lead the initiative for the development of a national obesity registry and framework for collaborative research in childhood obesity. This national initiative will build a network data infrastructure, called “PEDSNet” that will connect the EHRs of each institution, and create a community of patients, families, clinicians, scientists, and healthcare system leaders. This was awarded in part due to the foundational work HWP has done in developing the CHOP Obesity Registry.

Led by CHOP, PEDSnet comprises Cincinnati Children’s Hospital Medical Center, Children’s Hospital Colorado, Nemour’s Children’s Health System, Nationwide Children’s Hospital, St. Louis Children’s Hospital, Seattle Children’s Hospital, and Boston Children’s Hospital.