Examining Features of Disease Progression in Friedreich’s Ataxia

Principal Investigator: David Lynch, MD PhD, Children’s Hospital of Philadelphia
Sponsor: FARA

This new study involves people who previously participated in the 2008 phase 3 clinical trial of Idebenone. The purpose of this study is to better understand how this specific group of people has changed since participating in the Idebenone study. This study will only involve a review of medical records. If you (or your child) participated in the 2008 trial of Idebenone, you are invited to contact the study team and arrange transfer of medical records for our review. 

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For more information about this study, please contact the program at 267-426-7538 or email us at FAProgram@email.chop.edu