Specialists Involved in Your Child’s Care in the Pulmonary Hypoplasia Program
Reviewed by Lisa M. Herkert, MSN, CRNP
Reviewed on
Families cared for through Children’s Hospital of Philadelphia’s Pulmonary Hypoplasia Program experience unmatched continuity from prenatal diagnosis and delivery through the N/IICU and long-term follow-up, guided by a dedicated team of experts.
Ongoing medical and developmental assessment from an interdisciplinary team is a standard part of care for every child in our program. No other institution offers this level of coordinated attention and follow-up for children with pulmonary hypoplasia. All evaluations take place in one location, allowing our team to understand your child’s needs and create a plan for ongoing support.
Pulmonary Hypoplasia Program consultations and appointments are based on each child’s unique needs and may include the following:
General Surgery
As part of postsurgical follow-up, a pediatric surgeon, our nurse navigator and an advanced practice nurse will meet with your family to assess your child and address any issues that may arise as your child grows.
Pulmonary Medicine
A pediatric pulmonologist will work with you to support your child’s lung health. Pulmonary function testing may be completed during the visit, and supplemental vaccinations may be recommended.
Cardiology
A pediatric cardiologist will perform a complete cardiac history and exam. Testing such as blood work, an echocardiogram or an EKG is typically completed during the same visit.
Nutrition
A clinical dietitian will provide individualized guidance to meet your child’s nutritional needs through tube feeding, oral feeding or a combination of both, with a goal of supporting healthy growth.
Social Services
A social worker is available to help with financial concerns, school-related issues or other challenges. Social work can also connect families with community resources and support services.
Audiology
Because some children experience late-onset hearing loss, formal hearing tests are performed throughout early childhood.
Psychology and Pediatrics
A pediatrician and developmental psychologist will assess your child at various intervals to support physical growth, development and learning. These visits may also include evaluations by physical and occupational therapists.
Speech Therapy
A speech pathologist can assess oral motor function and swallow safety and address any challenges with feeding. Families may receive home strategies and recommendations for therapy.
Other Services
In some cases, additional appointments with a complex care pediatrician, genetics, orthopedics or gastroenterology may be recommended. Additional diagnostic testing may also be ordered by your care team.