Transition to Adulthood Resources
We have compiled an extensive list of resources that touch on a wide range of transition topics. You can contact our team at 1-800-TRY-CHOP if you have any questions.
Taking charge of your health
- Information for Patients Before You Turn 18: Starting to Learn Your Care
- Information for CHOP Patients 18 Years and Older
- For Teens: Self-Care Assessment
- Quick Tips Transitioning to Adult Healthcare
- Finding Adult Healthcare Providers
- Preparing For Your Medical Appointment
- Understanding Insurance
- Social Security Benefit Information for Adults
- Getting Started with Vocational Rehabilitation
- College Bound with a Disability
- Centers for Independent Living
Resources for parents and caregivers
- National Resource: Got Transition
- Information to Help Your Child Learn Their Care Before They Turn 18
- For parents/caregivers: self-care assessment
- Transition Planning: IEP
- Transition Planning: Section 504
- Disability Rights PA Transition Resources
- Advocacy Organizations *in development
Resources for young adults with intellectual or developmental disabilities
- Transitioning Your Medical Care
- Quick Tips Transitioning to Adult Healthcare
- National Resource: Got Transition
- Autism Resources
- General ID/D Resources: Trisomy 21 Toolkit
- Intellectual and Developmental Disability Services *in development
- Medical Decision Making *in development
- Social Security Benefit Information for Adults
- Planning for After High School *in development
- Getting Started with Vocational Rehabilitation
- Disability Rights PA Transition Resources
Transitioning to Adult Cystic Fibrosis Care: Devon’s Advice
CHOP’s Cystic Fibrosis Center was like a second home for Devon growing up. Now 21, she offers advice to other CF patients making the transition to adult care.
Resources by diagnosis
- Arthritis/Rheumatic Disease: Transitioning Your Arthritis and Rheumatic Disease Care to an Adult Provider
- Autism: CHOP Autism Center PASSAGE program
- Behavioral Health *in development
- Cancer/Oncology: Transition for Young Adult Cancer Survivors
- Cardiac Conditions: Transition Readiness and Awareness for Cardiac Kids (TRACK) Program
- Congenital Heart Disease: Philadelphia Adult Congenital Heart Center
- Cystic Fibrosis: Adult Cystic Fibrosis Care Program
- Diabetes: Transitioning to Adulthood with Diabetes Program
- Epilepsy: Helping Teens with Epilepsy Transition to Adult Care
- GI Conditions: Transition to Adulthood for Young Adults with Chronic GI Conditions Program
- Spina Bifida: Spina Bifida Program Transition to Adult Care
- Trisomy 21: Trisomy 21 Toolkit
- Urology Conditions: Urology Transitional Care Program
Resources for providers
- Transition to Adult Care Clinical Pathway
- Medical Summary: Patient Transitioning to Adult Care
- Sample Transfer Letter: Patient Transitioning to Adult Care
Contact the Transition to Adulthood Services
1-800-TRY-CHOP