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This video includes interviews with families whose children have leukodystrophies, and highlights from the first ever Leukodystrophy Center Family Conference, held at Children’s Hospital of Philadelphia in 2018.
Leukodystrophy, Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum (H-ABC), Aicardi-Goutières Syndrome (AGS), Alexander Disease, 4H Leukodystrophy
Related Centers and Programs:
Leukodystrophy Center, Division of Neurology
Some diseases affect only a small number of people, and yet CHOP’s commitment to researching and treating them is huge.
Hear from clinicians and families about how the Leukodystrophy Center is helping advance care for children with these disorders.
Chloe was 6 when she came to Children’s Hospital, where doctors finally identified her exact condition and its cause.