Pulmonary Hypoplasia Program Patient Stories
1 - 10 of 18
Hugh’s Story
![Hugh’s Story Hugh’s Story](https://www.chop.edu/sites/default/files/styles/teaser/public/hugh-s-story-16x9.jpg?itok=monbbt5n)
Hugh was diagnosed with congenital diaphragmatic hernia (CDH) in utero. His parents traveled to the Center for Fetal Diagnosis and Treatment at Children’s Hospital of Philadelphia (CHOP), which has treated more CDH cases than any hospital in the world. Hugh is now a healthy 10-year-old who proudly claims Philly as his hometown, and the Eagles as his favorite team.
AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia
![AJ patient story](https://www.chop.edu/sites/default/files/styles/teaser/public/AJ-patient-story-780x439.jpg?itok=6qot5ojk)
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.
Congenital Diaphragmatic Hernia Treatment Before Birth: Hendrix’s Story
![Hendrix's face Hendrix's face](https://www.chop.edu/sites/default/files/styles/teaser/public/congenital-diaphragmatic-hernia-treatment-birth-hendrixs-story-16x9.jpg?itok=8IrhNWCJ)
When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.
Success with Less-invasive Treatment for Pulmonary Hypoplasia: Lucy’s Story
![Lucy smiling Lucy smiling](https://www.chop.edu/sites/default/files/styles/teaser/public/success-less-invasive-treatment-pulmonary-hypoplasia-lucys-story-16x9-v2.jpg?itok=HwfA0WxT)
Lucy was born with small lungs and critical breathing challenges. The care she received at CHOP prepared her to go home with minimal breathing support.
Lily’s Story: Congenital Diaphragmatic Hernia Repair
![Closeup of Lily smiling Closeup of Lily smiling](https://www.chop.edu/sites/default/files/styles/teaser/public/cdh-patient-lily-16x9.jpg?itok=PJ3IshuE)
After receiving a prenatal diagnosis of CDH, Laura and Nick turned to the expertise of CHOP’s fetal team.
Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele
![Olly riding a swing Olly riding a swing](https://www.chop.edu/sites/default/files/styles/teaser/public/cdh-omphalocele-patient-olly-16x9.jpg?itok=ODPzB4Yt)
After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.
Giant Omphalocele: Emma’s Story
![Emma and her mom girl and mom smiling christmas costumes](https://www.chop.edu/sites/default/files/styles/teaser/public/emma-mom-16x9.jpg?itok=2uPFdteb)
After a long journey to overcome giant omphalocele, a life-threatening birth defect, Emma is thriving.
Fetal Surgery for Congenital Cystic Adenomatoid Malformation: Elijah’s Story
![Elijah Elijah](https://www.chop.edu/sites/default/files/styles/teaser/public/elijah-fetal-surgery-ccam-featured-canonical.jpg?itok=jrh55AUK)
Elijah needed a lifesaving surgery while he was still in his mother’s womb. Today, he's an active 6-year-old who loves basketball and T-ball, goes swimming, rides his bike, and rock climbs.
Congenital Diaphragmatic Hernia: Gage’s Story
![Gage and his brother Gage and his brother](https://www.chop.edu/sites/default/files/styles/teaser/public/congenital-diaphragmatic-hernia-patient-gage-16x9.jpg?itok=RQJMSbnx)
Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.
Congenital Diaphragmatic Hernia (CDH): Carter’s Story
![Carter with a pony Carter with a pony](https://www.chop.edu/sites/default/files/styles/teaser/public/carter-cdh-patient-with-pony-780x439.jpg?itok=WTglGmEp)
Even though home is near Washington, DC, Carter, 6, travels to Philadelphia for ongoing care for the congenital diaphragmatic hernia he was born with.