Epilepsy Patient Stories
1 - 10 of 15
Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care
Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.
Hyperinsulinism/Hyperammonemia: Daniel’s Story
Much has been learned about hyperinsulinism/hyperammonemia since Daniel first had severe low blood sugar as a baby. A new clinic as CHOP can help improve symptoms.
Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story
Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.
Autism, Seizure Disorder and NJTACC: Kyle's Story
CHOP’s NJTACC helps families find practitioners with an understanding of how to provide effective care for teens with special needs.
Hyperinsulinism/hyperammonemia Syndrome: Adam’s Story
Adam’s hyperinsulinism/hyperammonemia wasn’t well controlled until he came from Chicago to CHOP. Now he’s participating in research to help find a better treatment for HA.
Genetic Testing for Epilepsy Helped Ryan Be the Rambunctious Kid He Is Today
After years of uncertainty, genetic testing for epilepsy helped identify the cause of Ryan’s seizures. With this breakthrough, he’s now nearly seizure free.
Responsive Neurostimulation for Epilepsy: AJ’s Story
AJ’s life was relatively uncomplicated until age 14, when he began to experience unpredictable seizures and received a life-changing diagnosis of epilepsy. Thanks to the combination of a small, battery-powered device surgically implanted into his brain and an oral medication, he is now seizure-free.
Brain Surgery for Epilepsy: Emily's Story
State-of-the-art brain surgery at CHOP reduced Emily’s seizures from 90 per day to zero — it's been life changing for her and her family.
Ketogenic Diet to Control Seizures: Kayla’s Story
With support from CHOP’s Dietary Treatment Program, Kayla is following a modified ketogenic diet and living her busy teenage life seizure-free.
Seizures, Cerebral Palsy & Congenital Hydrocephalus: Evan's Story
This holiday season is extra special to Evan's mom: her 7-year-old survived a life-threatening medical emergency and is now home with his family.