Wood Center for Fetal Diagnosis and Treatment Patient Stories
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Eli’s Story: A Dad Reflects on His Son’s CCAM Diagnosis
Before Eli was born, he was diagnosed with a congenital cystic adenomatoid malformation (CCAM), a large mass in his left lung. Eli’s dad, Matt, shares the story of his family’s journey to CHOP.
Fetal Surgery for Pericardial Teratoma: Tucker’s Story
After undergoing fetal surgery at CHOP for a pericardial teratoma, Tucker became the first baby to survive having a tumor removed from his heart before birth.
Sacrococcygeal Teratoma (SCT): Ava's Story
Despite insurance obstacles, a family found hope at the Center for Fetal Diagnosis and Treatment after learning their baby had a sacrococcygeal teratoma (SCT).
Twin-twin Transfusion Syndrome (TTTS): Aiden and Dillon
After Aiden and Dillon were prenatally diagnosed with twin-twin transfusion syndrome (TTTS), Rachel underwent a fetal surgery procedure to halt the progression of the condition.
Twin-twin Transfusion Syndrome (TTTS): Luke and Landon’s Story
Luke and Landon were diagnosed with twin-twin transfusion syndrome before birth. Things got more complicated when the family learned that Luke also had a heart defect called tetralogy of Fallot and a lung lesion.
Spina Bifida: Ciarlo’s Story
Ciarlo was diagnosed before birth with spina bifida and had surgery at Children’s Hospital of Philadelphia the day after he was born. Today, he’s followed by the Spina Bifida Program.
Fetal Surgery for Sacrococcygeal Teratoma (SCT): Maeve’s Story
Before Maeve was born, doctors at Children’s Hospital of Philadelphia performed fetal surgery to remove a huge tumor growing from her tailbone called a sacrococcygeal teratoma (SCT).
Bladder Exstrophy: Bracken’s Story
Born with his bladder outside of his body (bladder exstrophy), Bracken faced significant challenges. His family found help and healing at Children’s Hospital of Philadelphia.
Congenital Diaphragmatic Hernia (CDH) and ECMO: Parker’s Story
After being prenatally diagnosed with congenital diaphragmatic hernia (CDH), Parker, now 9, was treated with extracorporeal membrane oxygenation (ECMO) on her first day of life.
Sacrococcygeal Teratoma (SCT) Surgery: Emily’s Story
At just one day old, Emily underwent surgery to remove a sacrococcygeal teratoma (SCT), a large tumor that had grown to be a third of her size by the time she was born.