Pulmonary Hypoplasia Program, CHOP | The Children's Hospital of Philadelphia

Pulmonary Hypoplasia Program

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About the Pulmonary Hypoplasia Program

Children who have been diagnosed with a condition that limits the ability of his or her lungs to fully develop, most commonly a congenital diaphragmatic hernialung lesion (such as CCAM or BPS) or giant omphalocele, may also develop a secondary condition called pulmonary hypoplasia. Pulmonary hypoplasia is characterized by small, underdeveloped lungs and may result in problems with:

The Pulmonary Hypoplasia Program (PHP) at The Children's Hospital of Philadelphia, established in 2004, is a comprehensive program that makes it easier for your child to receive complete care for this condition by providing information, treatment and hope not available elsewhere.

Our multidisciplinary team provides long-term follow-up and care for babies with conditions that cause small lungs. Some healthcare professionals are unfamiliar with the options available to families that face this condition, so we have developed this information to inform all providers and families of the services available for patients with pulmonary hypoplasia.

Watch the following video to learn more about the PHP.

VIDEO APPEARS HERE
 

By the numbers

CHOP's Pulmonary Hypoplasia Program currently follows more than 480 children through our research efforts, 324 of which are actively receiving follow-up care in our clinical program. We are the only institution studying the neurodevelopmental outcomes of these patients. Our goal is to improve understanding of pulmonary hypoplasia so that we can continuously improve care. Learn more about our research.

Specialized Care for Your Child

Ongoing developmental assessment from a multidisciplinary team is a standard of care provided to all children in the PHP program. No other institution provides this extra level of attention and concern when caring for these children.

The PHP team collaborates with families to improve a child’s pulmonary health, evaluate neurodevelopmental growth, monitor and treat any surgical issues that arise as the child grows, meet nutritional needs, monitor for late onset hearing loss, help locate resources and support services near their home, and more.

Evaluations take place in one location and enable our team to develop a clear picture of each child’s condition and a plan for ongoing support. Pulmonary Hypoplasia Program consultations and appointments are based on each child’s specific needs and may include the following:

To learn more about being treated through the Pulmonary Hypoplasia Program, visit A Day in the PHP for details.

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