Patient Stories, Pulmonary Hypoplasia | The Children's Hospital of Philadelphia

Pulmonary Hypoplasia Program

Patients Treated Through the Pulmonary Hypoplasia Program

Hearing from other patient families who have gone through similar diagnoses and treatments can be a great source of support and information for patients receiving long-term follow-up care through the Pulmonary Hypoplasia Program (PHP). Read the stories below to meet some of our patients who have been treated by CHOP's Pulmonary Hypoplasia Program and learn more about their experiences.

Giant Omphalocele

Like many patients with giant omphalocele, Jackson’s journey began with a prenatal diagnosis, and continues in the PHP.

Jackon's Story

Giant Omphalocele

Read about Charlotte's journey with giant omphalocele and how she's doing today.

Charlottes's Story

Congenital Diaphragmatic Hernia (CDH)

Learn about Peyton's comprehensive follow-up care since being prenatally diagnosed with CDH.

Peyton's Story

Lung Lesion (CCAM)

Diagnosed before birth with a congenital cystic adenomatoid malformation (CCAM), Max and his lungs are both strong and growing today.

Max's Story

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