Hearing from other patient families who have gone through similar diagnoses and treatments can be a great source of support and information for patients receiving long-term follow-up care through the Pulmonary Hypoplasia Program (PHP). Read the stories below to meet some of our patients who have been treated by CHOP's Pulmonary Hypoplasia Program and learn more about their experiences.
Like many patients with giant omphalocele, Jackson’s journey began with a prenatal diagnosis, and continues in the PHP.
Read about Charlotte's journey with giant omphalocele and how she's doing today.
Learn about Peyton's comprehensive follow-up care since being prenatally diagnosed with CDH.
Diagnosed before birth with a congenital cystic adenomatoid malformation (CCAM), Max and his lungs are both strong and growing today.