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Pulmonary Hypoplasia Program

If your baby has a condition that limits the growth of their lungs and causes them to have a condition known as pulmonary hypoplasia, you want to know their long-term care is in the hands of an experienced team. The Pulmonary Hypoplasia Program at Children's Hospital of Philadelphia (CHOP) is the only program of its kind dedicated to understanding and supporting the long-term needs of patients with pulmonary hypoplasia. Our team works together to improve your child’s breathing health. We evaluate their neurodevelopmental growth. We monitor and treat any surgical issues they have as they grow. We meet nutritional needs. We monitor for symptoms that develop later on in childhood, such as hearing loss. And we can help find resources and support services near your home.

How we serve you

The Pulmonary Hypoplasia Program at CHOP provides an unparalleled level of attention and concern when caring for children with pulmonary hypoplasia. Our multidisciplinary team works together to provide ongoing developmental assessment and the most comprehensive care for your child.

Conditions we treat

Having small, underdeveloped lungs can result in problems with breathing, feeding, cardiac function, hearing, meeting developmental milestones and more. We follow and care for children with conditions that commonly prevent the lungs from fully developing.

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Why choose us for pulmonary hypoplasia care

The Pulmonary Hypoplasia Program is one of the only programs evaluating the long-term health of children with diagnoses that cause small lungs in an effort to better support them as they grow

Physicians performing surgery

Meet your team

Here at the Pulmonary Hypoplasia Program, you have access to a team with a rare depth of knowledge, including specialists from neonatology, pulmonary medicine, cardiology, general surgery, nutrition, audiology, behavioral health, social services and more.

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Our locations

Access our pulmonary hypoplasia care at Buerger Center for Advanced Pediatric Care or our Philadelphia hospital.

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Our research

We follow children from birth throughout childhood to gain a better understanding of pulmonary hypoplasia's long-term impact, and we use what we learn to improve care.

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Pulmonary Hypoplasia Program resources

We have created resources to help you find answers to your questions and feel confident with the care you are providing your child.

Patient stories

Our Stories
Hugh was diagnosed with congenital diaphragmatic hernia (CDH) in utero. His parents traveled to the Center for Fetal Diagnosis and Treatment at Children’s Hospital of Philadelphia (CHOP), which has treated more CDH cases than any hospital in the world. Hugh is now a healthy 10-year-old who proudly claims Philly as his hometown, and the Eagles as his favorite team.
Our Stories
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.

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Your child's experience with the PHP

It can be helpful for you and your child to know what to expect when going to a doctor's appointment, especially when you might see multiple providers on the same day, like during a visit with our Pulmonary Hypoplasia Program (PHP). This advice from fellow PHP parents who have already gone through the same experience firsthand can help you prepare for your day of appointments.

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