Craniofacial Program
The Children’s Hospital of Philadelphia is one of the Nation’s leading centers for treating children with both congenital and acquired anomalies of the skull and face. The Craniofacial Program, founded in 1972, is a pioneer in craniofacial surgical techniques and features one of the largest and most experienced teams of pediatric specialists dedicated to evaluating and treating these complex conditions.
The Craniofacial Program is one of the largest single centers of its kind with more than 1,200 admissions for surgical procedures each year. Our high volume program also provides services to more than 5,500 outpatients annually. We are committed to providing comprehensive, high quality and family-centered care to our patients.
The Craniofacial Program at CHOP treats children from birth throughout their teenage years. When a child is prenatally diagnosed with a craniofacial defect we work together with the Center for Fetal Diagnosis and Treatment and the Garbose Family Special Delivery Unit within CHOP to monitor the pregnancy and help the family plan for the arrival of their baby and postnatal treatment options.
Babies born with congenital malformations of the skull and face have access to our specialized Neonatal Craniofacial Program, an extension of the Craniofacial Program created in collaboration with the Division of Neonatology. This program is dedicated specifically to evaluating and caring for neonates with congenital craniofacial defects, including micrognathia and tongue-based airway obstruction, who also have related health issues that require specialized care by CHOP’s expert neonatologists.
What we treat
The Craniofacial Program provides comprehensive, coordinated and dedicated care to patients with complex craniofacial conditions from time of diagnosis through surgery and long-term care. Our care is individualized to each patient’s specific needs, taking into account the patient’s age and stage of development.
The Craniofacial team provides a high level of expertise in evaluating and treating children born with complex congenital anomalies of the skull and face. We also treat children whose craniofacial condition occurred as a result of trauma or craniofacial tumors.
Some of the conditions we treat include:
Craniosynostosis
Syndromic craniosynostosis
- Apert’s syndrome (acrocephalosyndactyly)
- Clover-leaf skull anomaly (kleeblattschadel)
- Crouzon syndrome
- Muenke syndrome
- Pfeiffer syndrome
- Saethre-Chotzen syndrome
- Other rare syndromic diseases
Non-syndromic craniosynostosis
- Unicoronal synostosis (anterior plagiocephaly or unilateral coronal synostosis)
- Bicoronal synostosis (brachycephaly)
- Sagittal synostosis (scaphocephaly)
- Metopic synostosis (trigonocephaly)
- Lambdoid synostosis (posterior plagiocephaly)
- Complex multiple suture synostosis
Common craniofacial clefts
- Cleft lip and palate
- Stickler syndrome
Rare craniofacial clefts
- Rare, complex clefts of the facial skeleton
- Treacher Collins syndrome
- Hemifacial microsomia (also known as craniofacial microsomia, Goldenhar's syndrome, or first and second branchial arch syndrome)
Overgrowth syndromes
- Beckwith-Wiedemann syndrome
- Hemihyperplasia
Atrophic conditions
- Binder syndrome (maxilla-facial dysplasia)
- Complex cutis aplasia
- Fat atrophy
- Linear scleroderma
- Midfacial hypoplasia
- Parry-Romberg syndrome (progressive facial hemiatrophy)
Miscellaneous craniofacial syndromes and conditions
- Micrognathia
- Orbital hypertelorism
- Pierre Robin syndrome
- Craniofacial tumors
♦ Dermoid cysts
♦ Encephaloceles
♦ Fibrous dysplasia
♦ Neurofibromatosis - Deformational (or positional) plagiocephaly
- Tongue-based airway obstructions
- Vascular malformations
♦ Hemangioma
♦ Glomangioma
Learn more about the craniofacial conditions we treat »
Make an Appointment
To make an appointment with the Craniofacial Program, please call 215-590-2471.
For directions, maps and parking information, as well as additional details about insurance, referrals, and what you should plan on bringing with you to your appointment, visit our appointments page.
We look forward to working with you and your child.
Our Craniofacial Team
Our multidisciplinary craniofacial team is made up of specialists dedicated to the care and evaluation of children with complex craniofacial conditions. Because these conditions impact many different facial areas and functions, specialists from a variety of disciplines are needed to address these complex needs.
After a thorough and comprehensive evaluation, an individualized treatment plan is formulated with input from each of the specialists.
Our dedicated team of specialists includes:
Pediatric Plastic Surgeons
Scott P. Bartlett, MD
Oksana A. Jackson, MD
David W. Low, MD
Jesse A. Taylor, MD
Attending Neonatologists & Neonatal Outreach
Janet Lioy, MD, FAAP
Patti O'Connor, MS, BSN, RN
Nurse Practitioners
Charlene Deuber, DNP, MSN
Meg Ann Maguire, RN, MS, CRNP, CPNP
Patricia Schultz, MSN, CRNP, RN, CPSN
Psychosocial Services
Canice E. Crerand, PhD
Kim St. Lawrence, MSW
Leanne Magee, PhD
Orthodontic Services
Cynthia L. Koudela, DDS, MSD
Hyun-Duck Nah-Cederquist, DMD, PhD
Speech and Language Services
Audiologist
Maria Taffoni Hetlinger, AuD, CCC-A
Pediatric Services
Patrick S. Pasquariello Jr., MD
Growth Specialist
Reviewed by: Scott Bartlett, MD
March 2013
Contact Us
- 215-590-2208
- Contact Us Online
- Request an Appointment
