Whether you're visiting the Pulmonary Hypoplasia Program (PHP) for the first time, or coming back for your child's 6-year-old appointment, every visit will be tailored to include all the specialists and testing your child might need. We make every effort to have everything in one day, in one location. Our structure allows clinicians to communicate and work together easily, so we can provide the most comprehensive care for your child and you can leave with a clear picture of your child's condition and a plan for ongoing support.
The services we offer during your visit will be tailored to your child's specific needs and may include:
A developmental pediatrician, pediatric nurse practitioner and developmental psychologist will evaluate your child at specified intervals to optimize your child’s physical, developmental and educational needs.
A pediatric pulmonologist will work with you to make the most of your child's pulmonary (lung) health. As needed, the team will perform pulmonary function testing to provide the most complete evaluation. In some cases, supplemental vaccinations may be recommended.
A pediatric cardiologist will perform a full cardiac history and assessment. Any necessary testing, such as blood work, echocardiograms and EKGs, is completed during your visit.
As follow-up after your child's surgery, an evaluation by a pediatric surgeon and an advanced practice nurse allows us to respond to any post-surgical issues that may arise as your child grows and develops.
A dedicated clinical dietitian will provide specialized counseling to develop individual plans to meet your child’s nutritional needs, either through tube feedings, oral feedings or a combination of both, to attain optimal growth and development.
Formal hearing tests will be performed every six months until school age due to the risk of late-onset hearing loss.
A social worker is available to work with you to address financial matters, school issues or other concerns. Social work can also help you locate community resources and support services to help you provide the best possible care for your child.
In some instances, other evaluations, such as speech therapy, genetics, orthopedics, gastroenterology or ophthalmology, may be recommended. Additional testing may include X-ray, ultrasound, endoscopy, video swallow study, milk scan and upper GI.
Any additional visits with specific specialists and testing are arranged on an individual basis.
The Pulmonary Hypoplasia Program is located within the General Surgery Clinic on the 5th floor of the Richard D. Wood Ambulatory Care Center on CHOP's Main Campus. Visit our Location and Appointments page for directions and parking information.