Trisomy 21 (Down Syndrome) News and Updates

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Sibling Perspective: ‘The Most Outgoing Person I Know’

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Siblings of individuals with Down syndrome have a unique perspective about the condition and their loved ones. Cassie Strawser, research coordinator for CHOP's Trisomy 21 Program, shares what she's learned from her brother Sebastian.

REACH Your Potential: Next Session March 19

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CHOP's REACH Your Potential workshop is designed for youth ages 12 to 20 with Individualized Education Plans (IEPs) and their parents. The program focuses on advocacy in the IEP process, and social opportunities and services available after graduation.

Ask the Advocate: Achieving a Better Life Experience

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The Achieving a Better Life Experience (ABLE) Act of 2013 was reintroduced in Congress on Feb. 4 by a bipartisan, bicameral set of Congressional sponsors. This legislation will increase the independence of members of the disability community by allowing them to set aside funds for their daily needs without penalty.

CHOP Presents Monica & David Screening for Families

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Families of the Trisomy 21 program are invited to a special screening of the award-winning documentary Monica & David, a movie that explores the marriage of two adults with Down syndrome and the family that strives to support their needs.

CHOP’s Ninth Annual Trisomy 21 Symposium

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The Children's Hospital of Philadelphia are hosting a one-day symposium to provide parents and healthcare professionals with the most recent clinical information, therapeutic approaches and current research being conducted in the field of trisomy 21.

‘Self-Talk’ in Adults with Down Syndrome

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Self-talk in adults with Down syndrome can be a powerful coping mechanism, and is generally not a reason for concern. To learn more about the health and psychosocial needs of adults with Down syndrome, contact the Adult Down Syndrome Center at The Children's Hospital of Philadelphia.

Pool Groups Begin in March

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Aquatic therapy is a fun and effective way for children with Down syndrome to develop functional skills, build strength and improve total body coordination and body awareness, and learn water safety.
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