Most Recent Articles
Gene Therapy for Hemophilia: Are We There Yet?
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Recent gene therapy trial for hemophilia B showed promising results, with patients’ average factor IX level of 32 percent after treatment. CHOP aims to open a hemophilia A gene therapy trial modeled after the hemophilia B trial.
Insurance Update: Bleeding Disorders and the Affordable Care Act’s Sixth Anniversary
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Mike Schiller, MSW, LSW, summarizes the impact the Affordable Care Act has had on patients with bleeding disorders.
More than 5,000 Respond to National Survey of US Hemophilia Treatment Centers
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Find answers to what the National HTC Patient Satisfaction Survey is, why it was conducted, and what will be done with the results. See how CHOP was ranked.
Behind-the-scenes Leader: Mary Louise Mattia
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Mary Louise Mattia helps make the Hemostasis and Thrombosis Center (HTC) run! She is the HTC program coordinator and data coordinator, and is the voice you hear when you call the HTC office.
Calendar Created to Support Hemophilia Program at CHOP
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One of our HTC families created a fundraising project to support hemophilia research through the CHOP Foundation. The response has been so terrific that Zoe, the sister of our patient “Iron Max,” has upped the fundraising goal multiple times.
Transition Resources for Your Family
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CHOP's Transition to Adulthood Program website has a Resources section that includes age-specific tip sheets for parents or guardians and for children and youth, videos and information about in-person workshops that are hosted for families and teens.
Patient Experience Survey Coming to Clinic
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As part of our ongoing goal to provide the best care possible and to collect required data, all patients between the ages of 12 and 22 will be asked to complete a patient experience survey when you come to clinic for your annual comprehensive care visit.
World Hemophilia Day 2015
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The CHOP HTC in Voorhees, NJ, celebrated World Hemophilia Day on April 17, 2015. Staff were invited to wear clothing “from a country they cared about.”
Child Life Specialist Joins the Hematology Team
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Read about Katie Scarlett's experience as a child life specialist with The Children's Hospital of Philadelphia and the services child life specialists provide to patients and their families.
Welcome Backpacks for New Patient Families
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The HTC has just finished putting together welcome backpacks for patients newly diagnosed with hemophilia. The backpacks include a binder with important information for all new families.