Transitional Telehealth Home Care: REACH will pioneer a new approach to home monitoring for infants who have experienced neonatal surgery for congenital heart disease (CHD). Barbara Medoff-Cooper, PhD, CRNP, FAAN, RN was awarded R01 funding from the National Institute of Nursing Research, a division of the National Institute of Health (NIH).
REACH partners with parents to individualize care and helps them to recognize early changes in infant health status before an infant is in crisis. The REACH intervention will use daily parent-APN communication and a clinical information system that harnesses the power of speech technology to create a virtual home monitoring system using any telephone in combination, video-conferencing and a web-based educational system. This model will give families the opportunity for visual and audio contact with sub-specialists, and provides a means of home-based clinical follow-up of the high-risk infant during the critical early weeks after congenital heart surgery. We will conduct a randomized controlled trial (RCT) of the REACH intervention for 250 infants with complex congenital heart disease from two major pediatric cardiac centers. This is the first randomized clinical trial to test the effectiveness of a high-intensity surveillance technology-based home monitoring program in infants with complex CHD.
Infants will receive important state-of-the-art measurements to assess:
Dr. Barbara Medoff-Cooper is the Principal Investigator (PI). Dr. Medoff-Cooper is internationally recognized for her research on infant development, feeding behaviors in high-risk infants, and infant temperament. Her interdisciplinary team consists of nurses, cardiologists, statisticians and bioengineers from The Children’s Hospital of Philadelphia and The University of Pennsylvania.
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